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Beacon Stories
People with retinal disease describe their experiences “not looking blind.”
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CME — What It Is, and Why People with Retinal Diseases Should Know About It
Research NewsDr. Gerald Fishman discusses cystoid macular edema (CME), a potentially damaging accumulation of fluid in the retina affecting up to 32 percent of people with retinitis pigmentosa (RP).
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A Stem-Cells Video for Kids (and Newbies of All Ages)
Research NewsBiology and genetics can be difficult to understand for even an educated adult, so when something kid-friendly is produced, especially a video, we are eager to share it.
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Changing Someone’s Life: A New Video Emphasizes the Need to Support FFB’s Mission
Beacon StoriesAllison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
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Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome
Beacon Stories“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
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Lighting a Candle: The Author of a New Memoir Shares the Highs and Lows of Vision Loss
Beacon StoriesNicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
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Flight4Sight: A Man with Usher Syndrome Travels Around the Globe
Beacon StoriesThere’s nothing like a sense of urgency to turn what seems like a crazy idea into reality.
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Foundation Chairman, Gordon Gund, Interviewed on Forbes.com
Beacon StoriesThe driving force behind the Foundation’s considerable advances covers those, as well as other compelling subjects, during a 27-minute Q&A.
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An FFB Board Member’s Perspective on Her Experience with Acupuncture
Beacon StoriesMoira Shea describes her experience with acupuncture.
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Just How Tricky Halloween Can Be
Beacon StoriesFor those with night blindness, a symptom of many retinal diseases, most notably retinitis pigmentosa, or RP, navigating a trick-or-treating throng can be, well, a nightmare.
