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Displaying 9 stories results
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Two Twins, One Rare Diagnosis, and a Family Holding on to Hope
Invisible DisabilityRaising two twins with the same rare condition comes with challenges that many people cannot see. Everyday tasks often require extra patience, planning, and support. Our twins may experience the world differently, but they face it with courage every day.
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Meet Teddy: A Guide Dog Helping Navigate Life with Vision Loss
Invisible DisabilityIn honor of International Guide Dog Day, we’re spotlighting the life-changing partnership between people living with vision loss and their guide dogs, through the eyes of one very special dog.
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Low Vision, High Hopes: My Journey with Stargardt Disease
Invisible DisabilityFor most of my life, I carried my vision loss quietly and invisibly. Vision is not only what we see. It is what we dare to believe is possible. And when that belief meets support, community, and opportunity — lives change.
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The Super-Sticky Shoes: Living With Retinitis Pigmentosa When the World Can’t See the Glue
Invisible DisabilityIn this deeply personal reflection, author Patti Brite Taylor shares what it feels like to live with retinitis pigmentosa—and how that experience inspired her mystery novel, The Vanishing Cactus, centered on a heroine with low vision.
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Excerpt from Never Seen the Stars by Kate Korsh
Invisible DisabilityRead an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.
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Where Sight Fades, Music Begins
Invisible DisabilityBlindness isn’t always visible. It isn’t all or nothing because vision loss is a spectrum, but when I play, the music fills in what sight can not. It gives shape to what’s fading.
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Invisible Disability
You cannot tell by looking at me that I am visually impaired. The #1 reaction to my lack of sight confession, though, hands down, is a nervous laugh followed by the person not believing me.
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Invisible Disability
When I walk around the neighborhood with my white cane, I still worry about stigma and how people perceive me. I’ve had to remind myself that the cane is a tool to keep me safe.
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Invisible Disability
I find it difficult to explain my eyesight to people. I have retinitis pigmentosa (RP), which is a condition that progressively causes vision loss. I am legally blind, my peripheral vision is very limited, and most of what I see is blurry.
