Displaying 71–80 of 118 resources results
Feb 21, 2020
“If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”
Feb 21, 2020
“I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”
Feb 5, 2020
Al Linde has learned to “just roll with it” throughout his life to overcome many challenges.
Dec 17, 2019
Ashlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
Nov 22, 2019
Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
Oct 28, 2019
Elijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
Oct 15, 2019
Rachel Luehrs describes her journey of acceptance.
Oct 11, 2019
The Bergstein family has always been passionate about helping the Foundation Fighting Blindness.
Sep 30, 2019
Emmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”
Sep 20, 2019
Shawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.