Displaying 31–40 of 128 resources results
Mar 14, 2022
Advocating for the Foundation Through Professional Outreach
As a longtime supporter and advocate for the Foundation Fighting Blindness, Lora has recently begun working with the Professional Outreach team. Lora’s work helps eye care professionals in the Philadelphia region provide vital resources for their patients with inherited retinal diseases.
Feb 28, 2022
Foundation Arizona chapter president Fai Mo is sharing, in his own words, his experiences with being diagnosed with retinitis pigmentosa and how he found comfort in the Foundation Fighting Blindness community.
Jan 24, 2022
Adopted into a musical family, Miles Hoyt picked up a guitar at just four years old, and he hasn’t stopped playing since. Now Miles, who has Stargardt disease, and his parents are using music to bring their community together to raise funds for blinding diseases with their DIY fundraiser, Smiles for Miles.
Jan 10, 2022
Ambitious Entrepreneur Won’t Let Stargardt Stop Her
Beverley is a go-getter who does not let her Stargardt disease get in the way of living her life to the fullest. When Beverley isn’t hard at work as an entrepreneur, she enjoys spending time with friends, her dog, Loki, and is also an active leader of the Foundation’s Boston Chapter.
Dec 27, 2021
In Memoriam: Dr. Alan Laties – Early Leader in Retinal Research
Dec 13, 2021
At only three months old, Brendon was diagnosed with x-linked juvenile retinoschisis (XLRS). But with several other family members also with XLRS, Brendon knew he could still follow his passions for science and space. Now 22, Brendon is an Aerospace Engineer, starting a PhD program at UCF, and was recently awarded the prestigious National Science Foundation’s Graduate Research Fellowship.
Nov 22, 2021
Sean Teare has completed a marathon and a triathlon as DIY fundraisers for the Foundation Fighting Blindness.
Nov 15, 2021
At the age of five, Livie was diagnosed with LCA but her doctor immediately told her parents that clinical trials were underway and that Livie could soon be eligible for treatment. Not long after, they got a phone call from Spark Therapeutics and Livie received LUXTURNA®. Now eight, Livie’s confidence is at an all-time high with her “new eyes.”
Oct 25, 2021
Seeing Research Advances Firsthand
Mark does not let his retinitis pigmentosa diagnosis keep him from doing what he loves most, including spending quality time with his family. And in 2019, Mark began participating in a clinical trial, which he describes as life-changing.
Oct 15, 2021
Learning to Fall After Vision Loss
When Justin’s vision loss progressed quickly due to retinitis pigmentosa at 25 years old, he thought skateboarding wouldn’t be possible anymore. Ten years later, with the help of his white cane and audio devices, Justin is now working to enhance accessibility in skateboarding for the blind and visually impaired community.