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Displaying 21–30 of 44 resources results
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Heather Presnar’s Story: Living with Stargardt Disease
When you’re the catcher, the ball always comes to you. Heather Presnar wouldn’t have had it any other way.
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Sight and Song: The Christian Guardino Story
Christian Guardino has been singing for as long as he can remember; it’s the seeing that is something new.
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Artist with Usher Syndrome Excited to Register on My Retina Tracker to Drive Retinal Research
Artist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
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Traveling, Whether It Is Dark or Light
Moira’s Story
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An interview with Louis Posen, record label founder and retinitis pigmentosa patient.
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People with retinal disease describe their experiences “not looking blind.”
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Changing Someone’s Life: A New Video Emphasizes the Need to Support FFB’s Mission
Allison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
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Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome
“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
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Lighting a Candle: The Author of a New Memoir Shares the Highs and Lows of Vision Loss
Nicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
