Displaying 21–30 of 46 resources results
Dec 17, 2017 Beacon Stories
“I try not to get my hopes up too much, but I never lose hope; I’m determined. I just want to see my son’s face, see him get married, & see my grandchildren. I encourage everyone with a retinal disease to get a genetic test & to never ever give up hope.“
Oct 9, 2017 Beacon Stories
Joe Caruso, founder of FOCUS Wine Foundation, knows life both with and without the ability to see. His first memory is sitting in the waiting room with his mother at the Scheie Eye Institute in Philadelphia.
Sep 20, 2017 Beacon Stories
When you’re the catcher, the ball always comes to you. Heather Presnar wouldn’t have had it any other way.
Aug 7, 2017 Beacon Stories
Christian Guardino has been singing for as long as he can remember; it’s the seeing that is something new.
Jul 29, 2016 Beacon Stories
Artist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
Jun 27, 2016 Beacon Stories
May 9, 2016 Beacon Stories
Apr 15, 2015 Beacon Stories
An interview with Louis Posen, record label founder and retinitis pigmentosa patient.
Mar 20, 2015 Beacon Stories
People with retinal disease describe their experiences “not looking blind.”
Oct 14, 2014 Beacon Stories
Allison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.