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Displaying 21–30 of 69 resources results
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“If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”
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“I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”
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Al Linde “Keeps on Rolling” with Macular Degeneration
Al Linde has learned to “just roll with it” throughout his life to overcome many challenges.
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Charlie Kramer: Singing in the Dark
26-year-old Charlie Kramer is well-known as a professional song leader, songwriter and spiritual leader. But until recently, Charlie didn’t want to openly share his journey with vision loss.
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Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored
Ashlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
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Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
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Visionary Artist Elijah Overcomes All Obstacles
Elijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
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Rachel Wants to Raise White Cane Awareness
Rachel Luehrs describes her journey of acceptance.
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The Bergstein’s Are Striking Out Blindness
The Bergstein family has always been passionate about helping the Foundation Fighting Blindness.
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The Show Must Go on Despite Vision Loss Due to Stargardts
Emmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”
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