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Displaying 21–30 of 42 resources results
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Artist with Usher Syndrome Excited to Register on My Retina Tracker to Drive Retinal Research
Artist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
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Traveling, Whether It Is Dark or Light
Moira’s Story
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An interview with Louis Posen, record label founder and retinitis pigmentosa patient.
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People with retinal disease describe their experiences “not looking blind.”
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Changing Someone’s Life: A New Video Emphasizes the Need to Support FFB’s Mission
Allison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
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Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome
“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
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Lighting a Candle: The Author of a New Memoir Shares the Highs and Lows of Vision Loss
Nicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
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Flight4Sight: A Man with Usher Syndrome Travels Around the Globe
There’s nothing like a sense of urgency to turn what seems like a crazy idea into reality.
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Foundation Chairman, Gordon Gund, Interviewed on Forbes.com
The driving force behind the Foundation’s considerable advances covers those, as well as other compelling subjects, during a 27-minute Q&A.
