Displaying 21–30 of 42 resources results
Jul 29, 2016 Beacon Stories
Artist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
Jun 27, 2016 Beacon Stories
May 9, 2016 Beacon Stories
Apr 15, 2015 Beacon Stories
An interview with Louis Posen, record label founder and retinitis pigmentosa patient.
Mar 20, 2015 Beacon Stories
People with retinal disease describe their experiences “not looking blind.”
Oct 14, 2014 Beacon Stories
Allison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
Sep 10, 2014 Beacon Stories
“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
Jun 26, 2014 Beacon Stories
Nicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
Apr 21, 2014 Beacon Stories
There’s nothing like a sense of urgency to turn what seems like a crazy idea into reality.
Dec 12, 2013 Beacon Stories
The driving force behind the Foundation’s considerable advances covers those, as well as other compelling subjects, during a 27-minute Q&A.