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Displaying 21–30 of 77 resources results
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Allen has always wanted to be known as an artist, first and foremost. His photography hints at the ever-changing nature of people’s lives and their environment, much like his own progression with retinitis pigmentosa (RP).
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Coping with COVID-19: Welcome to the “New Normal”
We checked in with a few of the Foundation’s volunteers to get their perspective on these unprecedented times.
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Sue Lives Life to the Fullest and Wants to Help Others Do the Same
Meet Sue Sanger. Sue was diagnosed with retinitis pigmentosa (RP) at the age of 29 but has continued to travel, advance in her legal and political career, and more. In the following story, Sue explains, in her own words, all she has accomplished since learning she has RP and why she’s a supporter and member of the Foundation Fighting Blindness Legacy Society.
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Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.
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No Limits for Determined Paralympian Triathlete
Paralympian Elizabeth Baker says that Stargardt disease has made her a tougher person.
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February 14, 1941 – March 15, 2020
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Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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This is a father’s story on the night that changed his and his family’s life forever.
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“If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”
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“I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”
