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Displaying 21–30 of 303 diseases results
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Summary of the 11th Annual Retinal Therapeutics Innovation Summit
Research NewsThe 11th annual Retinal Therapeutics Innovation Summit featured 25 presentations from industry professionals worldwide and more than 400 attendees.
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Advocacy Foundation News
Biomedical research grants should be awarded based on scientific peer review
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The Clinical Trial That Opened His World
Beacon StoriesAfter decades of adapting to vision loss from retinitis pigmentosa (RP), Manny Fernandez became one of the first people to receive an experimental gene therapy in a clinical trial. The experience not only restored a small part of his peripheral vision but also renewed his hope for the future and inspired him to encourage others to consider clinical trials, too.
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Sepul Bio completes clinical trial enrollment for its USH2A retinitis pigmentosa treatment
Research NewsUltevursen from Sepul Bio progresses through phase 2b safety and efficacy clinical trial
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FDA approves Lumvoa, a new treatment for thyroid eye disease
Research NewsApproval gives patients an additional option to manage TED symptoms
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Living Life Through My Eyes: My Journey with XLRS
Invisible DisabilityThere are moments when I wish I could see the world the way everyone else does. But I’ve realized that focusing on what I’ve lost only takes away from what I still have. XLRS may affect my eyesight, but it doesn’t define who I am.
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Belite Bio Submits New Drug Application to FDA for its Stargardt Treatment
Research NewsTinlarebant becomes first Stargardt treatment submitted to FDA for approval
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Invisible Disability
Life is inherently uncertain, but what happens if we embrace that? Trust yourself and your intuition. My strength is for me to define, no one else.
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Beacon Stories
Tamar Bresge is an artist, writer, and educator living with retinitis pigmentosa (RP) due to Usher syndrome. She reflects on her vision loss journey from hiding her diagnosis to embracing it as an inseparable part of her identity — and how her work in art, writing, and teaching has become a way to create the visibility and connection she once needed herself.
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Potential Oral Stargardt Treatment Advances to Phase 3 Clinical Trial
Research NewsPromising oral treatment moves closer for Stargardt patients.
