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Displaying 621–630 of 779 for “retinitis clinical trial”
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Research News
2020 Llura Liggett Gund Award recipient honored for pioneering gene therapy that transformed vision research.
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More Than What You See: Navigating Vision Loss and Mental Health
Beacon Stories WellnessAt 25, Austin experienced sudden vision changes that led to a diagnosis of Usher syndrome type 2A, reshaping how he moved through the world and how he saw his future. The emotional impact of this vision loss affected his mental health, leading to isolation before he began to openly process his experience and seek connection. Today, he uses his journey to inspire Rare Perspective Co., creating space for more open conversations and understanding around vision loss.
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Meet Teddy: A Guide Dog Helping Navigate Life with Vision Loss
Invisible DisabilityIn honor of International Guide Dog Day, we’re spotlighting the life-changing partnership between people living with vision loss and their guide dogs, through the eyes of one very special dog.
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From Hiding to Helping: How Cory Turned Vision Loss Into a Life With No Limits
Beacon StoriesAfter years of hiding his vision loss, Cory Rainford now uses his voice to help others navigate life with choroideremia. As his blinding disease progressed, he worked hard to keep it invisible, even leaving his dream job. Today, through his YouTube channel Legally Blind No Limits, Cory shares honest, humorous videos about adapting and finding community, showing others that life with vision loss can still be full of possibilities.
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Low Vision, High Hopes: My Journey with Stargardt Disease
Invisible DisabilityFor most of my life, I carried my vision loss quietly and invisibly. Vision is not only what we see. It is what we dare to believe is possible. And when that belief meets support, community, and opportunity — lives change.
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Eye on the Cure Podcast | Episode 98: Jonathan & Josh Steinberg
Eye on the CureJosh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family’s journey with Josh’s vision loss.
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Excerpt from Never Seen the Stars by Kate Korsh
Invisible DisabilityRead an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.
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Answers at Last: How Genetic Testing Revealed Zach’s Bardet-Biedl Syndrome
Beacon StoriesFor years, Zach Lovell lived with vision loss that didn’t have a complete explanation. Genetic testing through the Foundation’s My Retina Tracker® Program revealed he had Bardet-Biedl syndrome (BBS), finally connecting decades of health challenges and bringing long-awaited clarity to him and his family. Today, Zach is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Eye on the Cure Podcast | Episode 94: Dr. Victoria Claire
Eye on the CureDr. Claire is a blind professional artist in contemporary sculpture.
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Films & Documentaries Showcase
Celebrating the powerful stories of individuals in the blind and low vision community through the art of film.
