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Displaying 561–570 of 790 for “retinitis clinical trial”
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Research News
The study is designed to evaluate the pharmacodynamics, safety and tolerability of emixustat in subjects with macular atrophy secondary to Stargardt disease.
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Learning and Building a Future With Vision Loss
Invisible DisabilityI have a degree to earn and changes in my vision to adapt to. My hope is to build a useful life and eventually encourage others who are also finding their way.
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“I Choose to Find Meaning in It”
Beacon StoriesAfter learning at 15 that he had retinitis pigmentosa (RP), Wyatt Edmondson found purpose in sharing his experiences through music and advocacy. Today, the Nashville singer-songwriter uses his voice to uplift the vision loss community while helping others feel seen and understood.
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Beacon Stories
Maggie grew up watching her mom navigate retinitis pigmentosa (RP), shaping her understanding of how vision loss affects entire families. Today, she uses her voice to raise awareness, support research, and help others affected by blinding diseases feel less alone.
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The Llura Liggett Gund Award is the highest honor presented by the Foundation Fighting Blindness, recognizing individuals whose careers have driven extraordinary progress toward treatments and cures for blinding diseases.
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“Asking for Help Is Not a Weakness”
Beacon StoriesAlthough signs of retinitis pigmentosa (RP) began much earlier, Marcela San Miguel Cantu wasn’t diagnosed until age 40 and only later came to fully understand how her vision was changing. Through asking for help and connecting with others, she found support, community, and hope for the future.
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Invisible Disability
C.J. Rodriguez opens up about life with retinitis pigmentosa and showcasing his experience through characters in his book, Bloom of the Huntresses.
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Finding the Light Within: How Joslyn Turned Vision Loss into Purpose
Beacon StoriesJoslyn Marquez spent years searching for answers before being diagnosed with retinitis pigmentosa at the age of 16. Rather than allowing vision loss to define her, she transformed her journey into a source of purpose, community and empowerment.
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Advocacy Foundation News
Biomedical research grants should be awarded based on scientific peer review
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Beacon Stories
Tamar Bresge is an artist, writer, and educator living with retinitis pigmentosa (RP) due to Usher syndrome. She reflects on her vision loss journey from hiding her diagnosis to embracing it as an inseparable part of her identity — and how her work in art, writing, and teaching has become a way to create the visibility and connection she once needed herself.
