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Displaying 481–490 of 664 for “retinitis clinical trial”
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Eye on the Cure Podcast | Episode 49: Alex Cohen, PhD
Eye on the CureJune 30, 2023. Alex Cohen, PhD, a marketing professor with retinitis pigmentosa, talks with host Ben Shaberman about his career in the hospitality industry and launch of Accessible Pharmacy, a comprehensive pharmacy service for people with vision loss.
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Fundraiser Success Stories
Lindsey Blankenship, president of the Foundation Fighting Blindness Colorado Chapter, has created a one-of-a-kind Raising Our Sights Event. Wine for a Cure aims to spread awareness and fundraise on behalf of the Foundation Fighting Blindness with two signature wines from the Oregon Winery, Stoller Family Estates. The featured wines are a Chardonnay named “Variant” and a Pinot Noir named “Pigmentosa.”
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Foundation News
The May 11th gala will raise awareness and fund research leading to treatments and cures for blinding retinal diseases.
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Traveling With a Guide Dog: Advice from a Seasoned Traveler
Beacon StoriesInternational Guide Dog Day, April 26th, is extra special to Janni Lehrer-Stein, as she’s celebrating the 5th anniversary of graduating with “the world’s best guide dog,” Shiloh. Janni, who has retinitis pigmentosa, has traveled to five countries outside of the United States with Shiloh and is sharing advice for traveling with a guide dog.
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Eye on the Cure Podcast | Episode 44: Jason Taylor
Eye on the CureApril 14, 2023. Electronica musician and composer Jason Taylor, aka Aether, talks with podcast host Ben Shaberman about his craft, inspirations, and how vision loss from retinitis pigmentosa has influenced his work. Jason’s ambient, ethereal music has been featured in a variety of popular video games including: viewfinder, mythwrecked: ambrosia island, Rocket League, and Kingdoms and Castles. He has a new EP out called Moonstone. Learn more at aetheraudio.co.uk and @atheraudio.
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Eye on the Cure Podcast | Episode 42: Paul Bresge
Eye on the CureMarch 10, 2023. Paul Bresge, chief executive officer at Ray Therapeutics, talks to host Ben Shaberman about his company’s emerging optogenetic therapy for restoring vision to people with advanced forms of retinitis pigmentosa (RP), Stargardt disease, and geographic atrophy (advanced dry age-related macular degeneration).
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Eye on the Cure Podcast | Episode 38: Ben Shaberman
Eye on the CureJanuary 6, 2023. For the first Eye on the Cure episode for 2023, host Ben Shaberman highlights some of the promising clinical advancement made in therapy development over the last year.
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Resourceful Advocate for Research
Beacon StoriesManorthia was diagnosed with retinitis pigmentosa (RP) when she was 22 years old but didn’t start experiencing considerable vision loss until years later. Once she began to notice her vision deteriorating more rapidly, she reached out to the Foundation Fighting Blindness to get involved with the blindness community.
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The Foundation Fighting Blindness is inviting you to share your vision-loss journey through written word, audio or video as a part of our October “Share Your Vision” campaign. Help your friends, family, and even people you don’t know, see the world through your eyes—because your story is powerful and unique. #ShareYourVision
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Charlie Kramer: Life Coach for the Disabled
Beacon StoriesRetinitis pigmentosa (RP) runs in Charlie Kramer’s family, so it wasn’t a surprise when he was diagnosed at a young age. But now, at 29 years old, Charlie is following his passion for helping and empowering others as a full-time life coach for those with disabilities.
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