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Displaying 431–440 of 556 for “Retinitis pigmentosa”
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Foundation News
Uni-Rare Study will improve clinical understanding of more IRDs and boost development of potential therapies.
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My name is Christy Johnson, I have Retinitis Pigmentosa, a degenerative, progressive disease that will eventually rob me of my sight. Having been diagnosed only 2 years ago, I learned that I now have 38 degrees of periphery, suffer from severe night blindness, and I am having difficulty being able to see certain colors.
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Foundation News
Initiatives to increase engagement and awareness around blinding retinal diseases.
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Foundation Fighting Blindness Makes Key Appointments to Leadership Team
Foundation NewsSeveral executives promoted to continue the advancement of the Foundation’s notable research and philanthropic efforts.
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Foundation Fighting Blindness Announces Leadership Changes
Foundation NewsJason Menzo named chief executive officer • Russell Kelley, PhD, MBA, appointed managing director of the RD Fund • Ben Yerxa, PhD, to lead Opus Genetics, the first RD Fund- and Foundation-backed spin-off company.
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Foundation Fighting Blindness to Host VISIONS 2022 Conference
Foundation NewsThe national conference will be held on June 17–18, featuring sessions with the latest research advancements, practical adapting and thriving, and an opportunity to connect with the blind and low vision community.
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Foundation Fighting Blindness Promotes Jason Menzo to President and Chief Operating Officer
Foundation NewsNoteworthy Foundation executive increases role within organization.
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In the Press
Initial programs will focus on treatments for rare pediatric blinding conditions. Company formed to advance the work of scientific cofounders Dr. Jean Bennett, Junwei Sun and Dr. Eric Pierce.
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Our new 2021 PSA campaign, “Together, We’re Winning,” showcases how four individuals living with vision loss continue to ‘win’ on their own terms, by living rich and full lives every day. Lachi, Beverley, Fai, and Mark are all active members of the Foundation Fighting Blindness community and Lulie’s Next Chapter network, and each maintains a positive attitude and winning spirit.
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Pediatric Ophthalmologists Target Inherited Retinal Diseases
In the PressNew opportunities continue to develop in an evolving landscape.
