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Displaying 391–400 of 757 for “retinitis clinical trial”
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Beacon Stories
Michael was matched with his first guide dog, Geo, a yellow Labrador retriever, in March 2020, two years after he applied with Guiding Eyes for the Blind. Michael and Geo now have a relationship unlike any other.
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Erin’s Unwavering Determination, Then and Now
Beacon StoriesDiagnosed with retinitis pigmentosa at a very young age, growing up, Erin never let her progressive vision loss stop her from keeping up with her friends and siblings. Throughout the 1990s, Erin was featured in several Foundation Fighting Blindness campaigns to raise funds for retinal research. Today, 34-year-old Erin is resilient as ever, still hopeful research will one day find her a cure.
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A diagnosis of an inherited retinal disease (IRD) can be challenging for both patients and their doctors. But the Foundation can help eye care professionals provide resources and information to enable patients to better understand and manage their conditions, and potentially qualify for clinical trials of emerging therapies.
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Consortium Genetically Tests 40 Percent of People in Israel with IRDs
Research NewsPatient benefits from genetic testing for IRDs include confirmation of their clinical diagnosis, identification of the disease inheritance pattern and risk for other family members, and determination of human studies for emerging therapies that may be appropriate for them.
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Disease
Often diagnosed in childhood or adolescence, Stargardt disease is an inherited form of macular degeneration causing central vision loss. The condition is sometimes referred to as juvenile or early onset macular degeneration.
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Leber Congenital Amaurosis (LCA)
DiseaseLCA is a group of inherited retinal diseases causing blindness or severe vision loss in early childhood.
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Stem-Cell Therapy Clinics Remain Inadequately Regulated, Pose Risk to Patients
Research NewsIf a clinic is charging for a stem-cell treatment or procedure for an IRD, it is probably not legit. The expense to the patient is a major red flag.
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Research News
Dr. Weleber became the 10th recipient of the Foundation’s highest honor, named after FFB co-founder Lulie Gund, during the opening lunch of the VISIONS 2016 conference.
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Gene Therapy Strengthens the Retina's Connection to the Brain
Research NewsWhat happens to the brain when the eye is enabled to see through gene therapy? Would the brain and eye restart their partnership? We now know the answer is yes.
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