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Displaying 391–400 of 645 for “retinal diseases”
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Ambitious Entrepreneur Won’t Let Stargardt Stop Her
Beacon StoriesBeverley is a go-getter who does not let her Stargardt disease get in the way of living her life to the fullest. When Beverley isn’t hard at work as an entrepreneur, she enjoys spending time with friends, her dog, Loki, and is also an active leader of the Foundation’s Boston Chapter.
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Ambitious Swimmer Spreading Optimism
Beacon Stories26-year-old Becca is a two-time Paralympic swimmer for Team USA, diagnosed with Usher syndrome type 1 (USH1) at only four years old. But she has never let her diagnosis with Usher syndrome stop her from doing exactly what she puts her mind to.
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Beacon Stories
18-year-old Marty Dubecky has a very unique decision to make. There are currently four gene therapy clinical trials for him to choose from to enroll in, which would have been unheard of 15 years ago when he was first diagnosed with XLRP.
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Foundation’s No-Cost Program Increased Genetic Testing Rates for IRD Patients
Research NewsMore than 8,000 people have applied for genetic testing through the Foundation’s program
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George Dolan: Cherished Friend and Community Advocate
Beacon StoriesGeorge was well-known in his community for his integrity and dedication to helping everyone around him.
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Are You on the Clinical Trial Radar Screen?
Research NewsTherapy developers use the My Retina Tracker Registry to recruit for human studies of emerging therapies
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AGTC Announces Results for Achromatopsia Gene Therapy Clinical Trials
Research NewsThe company will continue enrolling younger patients in higher dosing groups.
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jCyte Reports Promising Results for Phase 2b Clinical Trial of its Cellular Therapy for RP
Research NewsThe emerging therapy is designed to work independent of the mutated gene causing vision loss
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Sue Lives Life to the Fullest and Wants to Help Others Do the Same
Beacon StoriesMeet Sue Sanger. Sue was diagnosed with retinitis pigmentosa (RP) at the age of 29 but has continued to travel, advance in her legal and political career, and more. In the following story, Sue explains, in her own words, all she has accomplished since learning she has RP and why she’s a supporter and member of the Foundation Fighting Blindness Legacy Society.
