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Displaying 371–380 of 665 for “retinitis clinical trial”
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Staying True to Music, Family, and Advocacy
Beacon StoriesMusic duo Andrew & Polly have earned a GRAMMY nomination for their children’s album “Ahhhhh!” while also championing disability awareness and inclusivity. Andrew’s experience with Stargardt disease fuels their advocacy, inspiring others through their music, podcast, and dedication to research and community support.
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Foundation Fighting Blindness Comments on Proposed NIH Reforms
Foundation NewsThe Foundation responds to the U.S. House of Representatives Energy and Commerce Committee on the framework for reforming the National Institutes of Health
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Beacon Stories
Maverick, a determined and adventurous 10-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.
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A Vision of Hope and Light: Fai and Patrick’s Journey with the Foundation Fighting Blindness
Beacon Stories“Legacy giving is about carrying the torch for future generations,” Fai shares. “It’s about ensuring that one day, we can all celebrate victories over vision loss together.”
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ARVO 2024 Highlight: New Gene Linked to RP in People with African Ancestry
Research NewsThe discovery will help geneticists diagnose more RP patients with African descent.
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SalioGen Developing Novel Gene Insertion Therapy for Stargardt Disease
Research NewsThe company’s innovative Gene Coding™ platform enables seamless insertion of DNA into selective genomic locations.
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Eye on the Cure Podcast | Episode 35: Kenji Fujita, MD
Eye on the CureNovember 18, 2022. Ben Shaberman talks with Kenji Fujita, MD.
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Advocating for the Foundation Through Professional Outreach
Beacon StoriesAs a longtime supporter and advocate for the Foundation Fighting Blindness, Lora has recently begun working with the Professional Outreach team. Lora’s work helps eye care professionals in the Philadelphia region provide vital resources for their patients with inherited retinal diseases.
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FDA Approves Genentech’s Susvimo for Treating Wet AMD
Research NewsThe approach significantly reduces the need for regular ocular injections.
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Foundation Fighting Blindness to Host Fall National Virtual VisionWalk
Foundation NewsThe Virtual VisionWalk on October 24th will raise awareness and fund research leading to treatments and cures for blinding retinal diseases.
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