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Displaying 241–250 of 715 for “retinitis clinical trial”
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Eye on the Cure Podcast | Episode 92: Lance Baldo, MD
Eye on the CureLance Baldo, MD, CEO at Beacon Therapeutics, is discussing his company’s gene therapy for XLRP.
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Turning RP into a Canvas of Hope
Beacon StoriesDiagnosed with retinitis pigmentosa (RP) at 12, Raquel spent years navigating vision loss without support. But everything changed when she connected with the Foundation Fighting Blindness — and found not just answers, but community. Now an artist, advocate, and leader in San Diego, Raquel uses her story and her art as the founder of Unblurred Collection to raise awareness, give back, and inspire others living with blinding diseases.
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ARVO 2024 Highlight: InGel’s Cell Therapy Shows Promise for Preserving Vision
Research NewsThe emerging treatment is designed to work for people with RP and other conditions regardless of the gene mutation causing disease
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NY Researcher’s App Transforms Commuting for the Visually Impaired
Beacon StoriesJohn-Ross Rizzo, a dedicated New York-based researcher, was confronted with life-altering news at a young age when he was diagnosed with choroideremia. Driven by the obstacles he faced due to his condition, he now stands as a key figure leading the development of advanced assistive technology, with the goal of reshaping the daily commutes of those with low vision and blindness.
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Webinar for the X-Linked Retinitis Pigmentosa (XLRP) Community
Research NewsThe Foundation Fighting Blindness recently held a webinar to provide details about an upcoming Externally-Led Patient Focused Drug Development (EL-PFDD) meeting for XLRP, and to provide background information about the Food and Drug Administration’s (FDA) drug review process.
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ARVO 2015 Highlight: New Research Boosts Prospects for Saving Vision with RdCVF
Research NewsAfter years of refinement and testing in animal models, the emerging therapy is about a year and a half from moving into a clinical trial.
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A Stem-Cells Video for Kids (and Newbies of All Ages)
Research NewsBiology and genetics can be difficult to understand for even an educated adult, so when something kid-friendly is produced, especially a video, we are eager to share it.
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Gene Therapy Revives Cones Long After They Stop Working
Research NewsA Foundation-funded research group is developing a gene therapy that revives degenerating cones, enabling them to regain their ability to respond to light and provide vision.
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Genetic Testing for Inherited Retinal Diseases through the Foundation’s Open Access Program
Research NewsThe benefits of genetic testing for IRD patients, how to participate in the Foundation’s Open Access program, and what to expect from the genetic testing process.
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Unregulated Stem-Cell Therapy Causes Severe Vision Loss for Three Florida Women
Research News“…participation in a study for an emerging therapy that is not regulated by the FDA or another well-recognized regulatory agency like the European Medicines Agency in Europe, is fraught with dangers and can lead to unexpected serious consequences.”
