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Displaying 201–210 of 543 for “Retinitis pigmentosa”
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Vision: A Memoir of Blindness and Justice — A New York Times Editor’s Pick
Foundation News“Tatel’s humility and tenacity shine. The result is a stirring reflection on an extraordinary life,” Publishers Weekly
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Foundation News
Social media campaign to encourage personal story sharing to spread awareness about blinding diseases and empower involvement with the Foundation Fighting Blindness.
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AAVantgarde Bio’s Dual-Vector USH1B Gene Therapy Moves into Phase 1/2 Clinical Trial
Research NewsThe trial is the first ever for a dual AAV gene therapy delivered to the retina.
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Research News
The Phase 3 trial is expected to begin in Q1 2025
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Lead With Luna: Meredyth’s Journey With Her Guide Dog
Beacon StoriesIn honor of National Dog Day, we’re celebrating the work of guide dogs and raising awareness about the importance of guide dog services by sharing Meredyth’s story. Her guide dog, Luna, has greatly improved her independence and quality of life, showcasing the significant benefits of guide dog services for those who are blind or have low vision.
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Foundation Fighting Blindness Comments on Proposed NIH Reforms
Foundation NewsThe Foundation responds to the U.S. House of Representatives Energy and Commerce Committee on the framework for reforming the National Institutes of Health
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Foundation News
The four-year study will inform clinical trial design for emerging USH3 therapies.
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Barry Smith and Emily Harding Smith
Beacon Stories“I have spent a lifetime attempting to prove what I can do, which has allowed Emily and I to be in a place where we can help. Please consider joining us.“
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A Vision of Hope and Light: Fai and Patrick’s Journey with the Foundation Fighting Blindness
Beacon Stories“Legacy giving is about carrying the torch for future generations,” Fai shares. “It’s about ensuring that one day, we can all celebrate victories over vision loss together.”
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Capturing Life Through A Deaf-Blind Lens
Beacon StoriesBrian Bossert has turned his passion for photography into a successful career. As a commercial photographer and videographer living with Usher syndrome, Brian has a unique perspective and is using his creativity to inspire others as he shares his vision through photos and videos.
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