Stargardt Webinar Series: Living and Thriving Webinar

Meet Our Speakers

We have brought together two speakers who offer a powerful combination of professional expertise and lived experience in the Stargardt community:

• Katie O'Connor, M.Ed
  Katie is an Outreach and Development Specialist at Hadley. With a background in education, she is dedicated to connecting communities and professionals with practical, accessible resources tailored for individuals navigating vision loss and their loved ones. Katie’s expertise focuses on making information and tools easily usable, empowering people with Stargardt disease and other vision conditions to manage daily challenges and stay informed.
• Jennifer Probst
  Jennifer is a New York Times Bestselling Author and a passionate advocate within the Stargardt community. She will be sharing a deeply personal side of her life, focusing on her son’s journey with the disease. Jennifer’s talk will offer valuable firsthand insights into the process of navigating clinical trials, alongside practical and helpful advice for managing school, social, and societal challenges related to Stargardt disease. She is committed to giving back to the community that has supported her family.

You will gain valuable insight on:

• Real-world, Accessible Resources: Tools and tips to simplify daily living with Stargardt disease.
• Empowerment Strategies: Practical advice for addressing challenges in school and social settings.
• Clinical Trial Insight: Firsthand experience and information on navigating the clinical trial process.
• Community Connection: A chance to feel informed and supported.

Sponsored by Alkeus Pharmaceuticals.

Join us by completing the registration form below: