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Displaying 151–160 of 172
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Jul 29, 2016
Artist with Usher Syndrome Excited to Register on My Retina Tracker to Drive Retinal Research
Beacon StoriesArtist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
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Jun 27, 2016
Two Philanthropic Brothers — Selling Luxury Casual Wear for the Good of Retinal Research
Beacon StoriesThe story of Two Blind Brothers, a luxury clothing line that donates its proceeds to retinal research.
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Apr 15, 2015
Beacon StoriesAn interview with Louis Posen, record label founder and retinitis pigmentosa patient.
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Mar 20, 2015
Beacon StoriesPeople with retinal disease describe their experiences “not looking blind.”
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Oct 14, 2014
Changing Someone’s Life: A New Video Emphasizes the Need to Support FFB’s Mission
Beacon StoriesAllison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
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Sep 10, 2014
Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome
Beacon Stories“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
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Jun 26, 2014
Lighting a Candle: The Author of a New Memoir Shares the Highs and Lows of Vision Loss
Beacon StoriesNicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
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Apr 21, 2014
Flight4Sight: A Man with Usher Syndrome Travels Around the Globe
Beacon StoriesThere’s nothing like a sense of urgency to turn what seems like a crazy idea into reality.
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Dec 12, 2013
Foundation Chairman, Gordon Gund, Interviewed on Forbes.com
Beacon StoriesThe driving force behind the Foundation’s considerable advances covers those, as well as other compelling subjects, during a 27-minute Q&A.