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Foundation News
The event will review best practices for care and management of patients with inherited retinal diseases such as retinitis pigmentosa, Usher syndrome, and Stargardt disease.
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Foundation News
This exclusive conversation and acoustic performance by Sam and Casey Harris of X Ambassadors on August 20, will raise awareness and funds to find treatments and cures for blinding diseases.
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Foundation News
The inaugural credit-based event will include education on inherited retinal diseases, physician resources, and current clinical trials.
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Proceed with Caution as Cell-Based Retinal Disease Therapies Show Promise.
In recent years, the number of stem cell treatments offered by various clinics claiming to benefit retinal eye disease has increased. Of concern, are those clinics administering stem cell-based therapies that do not adhere to the U.S. Food and Drug Administration’s (FDA) standards. Recently, a federal court ruled that the FDA has regulatory authority over stem cell procedures and has the power to halt them, even if the stem cells originate from the participating patient.
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Most people are able to make a far more significant gift by including the Foundation in their will or trust or making a gift by beneficiary designation. Often called “legacy gifts”, these types of deferred gifts allow you to continue to be part of ending blindness for many decades to come.
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Foundation News
My Retina Tracker Program is the highest volume IRD genetic testing program in the U.S.
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At the Foundation Fighting Blindness, our employees are true beacons of hope as they are committed to our urgent mission to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases.
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Coping with a Vision Loss Diagnosis
Being diagnosed with an eye condition that causes partial or complete vision loss is a highly emotional experience. Vision loss may come unexpectedly and be frightening. Newly-diagnosed patients frequently struggle with grief and depression, similar to losing a loved one. When managed using healthy coping methods and strategies, this is a natural and normal response to vision loss.
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Jack Sees a Different Life after LUXTURNA
Beacon StoriesJack Hogan was diagnosed with retinitis pigmentosa at only two-and-a-half years old. But with the help of connections made with the Foundation, Jack became the first-ever recipient of the FDA-approved gene therapy known as LUXTURNA.
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ARVO 2019: Emerging Eloxx Molecules Show Promising Results in Usher Models
Research NewsEloxx Pharmaceuticals is developing small molecules that permit read-through of point mutations that cause Usher syndrome 1F and 2A.
