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Jul 19, 2017
Twelve People Receive XLRS Gene Therapy in AGTC's Clinical Trial
Research NewsAGTC’s gene therapy uses a human-engineered virus — and adeno-associated virus or AAV — to deliver normal copies of retinoschisin to the patient’s retina.
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Aug 18, 2016
Optogenetic Therapy Takes First Step Forward in Clinical Trial
Research NewsRetroSense’s optogenetic therapy is designed to restore vision to people who are completely blind from retinal degenerative diseases such as retinitis pigmentosa by bestowing light sensitivity to retinal ganglion cells, which survive after photoreceptors, the cells that make vision possible, are lost.
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Jul 29, 2016
Artist with Usher Syndrome Excited to Register on My Retina Tracker to Drive Retinal Research
Beacon StoriesArtist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
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May 5, 2016
ARVO 2016: High-School Sophomore Finds Gene Mutation in Family with Choroideremia
Research NewsAditya A. Guru, 16, used whole exome sequencing (WES), an innovative genetic-screening technology, to find the mutation.
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Oct 10, 2014
Genetics 101: How Some Retinal Diseases are Inherited
Research NewsTo understand heredity, you have to know a little about genetics. Below is a review of the three major genetic-disease inheritance patterns.
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Jan 29, 2014
The Power of Suggestion — Challenges of the Placebo Effect
Research NewsEven in a well-designed clinical trial, the placebo effect can rear its head.
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Jan 14, 2014
Vision Improvements Reported in Choroideremia Gene Therapy Clinical Trial
Foundation NewsFive of six participants in the initial study group have sustained vision improvements in their treated eyes in dim settings.
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Dec 12, 2013
Foundation Chairman, Gordon Gund, Interviewed on Forbes.com
Beacon StoriesThe driving force behind the Foundation’s considerable advances covers those, as well as other compelling subjects, during a 27-minute Q&A.
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Jun 30, 2013
Taking Their Story of Vision Loss on the Road
Beacon StoriesRollie and Sandie Purvis, parents of two sons with choroideremia, describe their sons’ film project, “Driving Blind.”
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May 1, 2025
Navigating Mental Health Challenges in the Blind and Low Vision Community
Living and Thriving WellnessFor individuals living with blindness or low vision, each day can bring unique challenges—from navigating the physical world to managing the emotional toll of vision changes.