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Letter to House Energy & Commerce Committee regarding H.R.1262, the Give Kids a Chance Act.
Advocacy Research NewsOn behalf of the Foundation Fighting Blindness and the millions of Americans impacted by inherited retinal diseases (IRDs), we urge you to advance H.R.1262, the Give Kids a Chance Act, and reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program.
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Legacy Donor Spotlight: Dr. Debora Elliott Ward
Beacon StoriesDr. Debora Elliott Ward, a clinical psychologist living with retinitis pigmentosa, shares her journey of resilience, professional success, and commitment to supporting the Foundation Fighting Blindness by naming it a beneficiary in her estate plans.
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Invisible Disability
I find it difficult to explain my eyesight to people. I have retinitis pigmentosa (RP), which is a condition that progressively causes vision loss. I am legally blind, my peripheral vision is very limited, and most of what I see is blurry.
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Eye on the Cure Podcast | Episode 86: Lenore von Krusenstiern, MD, PhD
Eye on the CureDr. Lenore von Krusenstiern talks about Bluerock’s clinical trial for a photoreceptor replacement therapy for people with inherited retinal conditions such as retinitis pigmentosa and cone-rod dystrophy.
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Well-prepared estate plan brings peace of mind—knowing your loved ones are cared for and your wishes will be honored. It also offers a unique opportunity to leave a lasting impact on a cause important to you.
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The Mental Health Resource Center serves as a trusted space, offering tools, resources, and connections to help individuals and families manage the unique emotional complexities associated with vision changes.
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Eva Lou Schroeder Watson's Enduring Legacy
Beacon StoriesEva Watson’s life was marked by her dedication to advancing medical research for blinding diseases, and her generous bequest to the Foundation Fighting Blindness ensures her advocacy will endure. Her story highlights the profound impact of her contributions to driving treatments and cures for blinding diseases.
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Eye on the Cure Podcast | Episode 77: Dr. Bob Bell
Eye on the CureDr. Bell, the CSO of Ascidian Therapeutics, talks about STELLAR, the company’s Phase ½ clinical trial for its emerging RNA-rewriting therapy for Stargardt disease (ABCA4 mutations).
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Foundation Forums | Arizona Visionaries
Arizona Visionaries provides a virtual platform for professionals serving the blind and low vision community in Phoenix and surrounding areas to showcase services and other resources.
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ARVO 2024 Highlight: New Gene Linked to RP in People with African Ancestry
Research NewsThe discovery will help geneticists diagnose more RP patients with African descent.
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