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Foundation News
Course Title: A Review and Comparison of Different Forms of Age-Related and Inherited Macular Degenerations
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Eye on the Prize Winner: Josh/Nicholls State University
Beacon StoriesThis year, the Foundation created a new fundraising initiative called Eye on the Prize, influenced by March Madness. The winner of the inaugural Eye on the Prize competition was Nicholls State University, raising $2,428. This winning team was led by Josh Cogswell, an assistant professor of management at Nicholls State University, who has his own personal connection to the Foundation’s mission.
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Beacon Stories
At the age of five, Livie was diagnosed with LCA but her doctor immediately told her parents that clinical trials were underway and that Livie could soon be eligible for treatment. Not long after, they got a phone call from Spark Therapeutics and Livie received LUXTURNA®. Now eight, Livie’s confidence is at an all-time high with her “new eyes.”
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Seeing Research Advances Firsthand
Beacon StoriesMark does not let his retinitis pigmentosa diagnosis keep him from doing what he loves most, including spending quality time with his family. And in 2019, Mark began participating in a clinical trial, which he describes as life-changing.
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Disease
Refsum disease is an inherited condition that causes vision loss, absence of the sense of smell, and a number of other symptoms.
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Jumping into an Uncharted Arena
Beacon StoriesThirty-one-year-old Wren Blae Zimmerman always loved horses. But it wasn’t until a few years ago that Wren finally learned to ride. Now her life revolves around this equestrian dream, and she’s given herself the title of the “Blind Show Jumper.”
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FDA Approves New Wet AMD Treatment that can be Administered Every Three Months
Research NewsBeovu from Novartis reduces treatment burden for wet AMD patients
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Harriet Finkelstein, Foundation Angel, Passes Away
Foundation NewsThough unaffected by vision loss, she brought great passion to driving the Foundation’s mission.
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