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About Page
The Foundation Fighting Blindness Brand Ambassador Program empowers passionate individuals affected by blinding diseases to share their stories, raise awareness, and inspire action in the fight against vision loss. Together, we’re amplifying voices and accelerating our path to treatments and cures.
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Eye on the Cure Podcast | Episode 90: Dr. Christina Ohnsman
Eye on the CureDr. Christina Ohnsman talks about Tern Therapeutics, a start-up company she co-founded to develop gene therapies for Batten disease and potentially other conditions.
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Recordings from the 2025 Stargardt's Summit
The Stargardt’s Summit, made possible with the support from Alkeus Pharmaceuticals, was hosted by the Foundation Fighting Blindness, Prevent Blindness, the Carroll Center for the Blind, and The Blind Life. This virtual summit enabled participants to learn about the newest Stargardt research, explore adaptive living resources, hear impactful patient stories, and connect with others going through similar journeys.
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Donate directly from your IRA to the Foundation Fighting Blindness without counting the gift as taxable income.
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Wet AMD Treatment Susvimo Preserves Vision for Five Years in Phase 3 Clinical Trial
Research NewsSusvimo is an FDA-approved treatment that continuously delivers drug through a tiny, implanted capsule
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Enjoy 20% off your estate plan purchase.
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Perseverance of a Six-Time Paralympian
Beacon StoriesAs a six-time goalball Paralympian, Lisa has turned her progressive vision loss into a powerful source of strength and inspiration. Through her incredible journey—overcoming barriers, achieving five Paralympic medals, and becoming a passionate disabilities advocate—Lisa exemplifies how embracing life’s challenges can lead to extraordinary success and personal growth.
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Eye on the Cure Podcast | Episode 89: Dr. Christine Curcio
Eye on the CureDr. Curcio talks to host Ben about her epic career and recent Proctor Medal lecture with Dr. Cynthia Owsley at the 2025 ARVO conference.
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Ocugen Launches Phase 2/3 Clinical Trial for Stargardt Disease Gene-Modifier Therapy
Research NewsThe therapy delivers copies of the RORA gene to address multiple disease pathways.
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Shifting Perspectives—One Video at a Time
Beacon StoriesNatasha Caudill is a content creator and disability advocate who uses her platform of over 1.3 million TikTok followers to shift perceptions about blindness and achromatopsia. Through candid and educational videos, she invites others to experience the world through her eyes, literally in black and white. Her content reminds us that disability isn’t a limitation but simply a different and equally valuable way of experiencing the world.
