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Woodburning Gives DeafBlind Artist Purpose
Beacon StoriesKrista Webb has embraced woodburning as a creative outlet to cope with her progressive vision loss due to Usher syndrome. And Krista has built a supportive community on Instagram, where she shares her art and advocates for the blindness community.
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ARVO 2016: Choroideremia Gene Therapy in Clinical Trial Continues to Perform Well
Research NewsFive of six patients in NightStaRx’s choroideremia gene-therapy trial continue to benefit from the treatment.
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Whether you’re supporting someone with vision loss or looking to deepen your own understanding, these resources — developed in collaboration with the blind and low vision community — are designed to help therapists provide thoughtful, informed care.
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Promising Results from Lab Study of Gene Therapy for Cone-Rod Dystrophy
Research NewsThe study is an important step toward a clinical trial of the approach
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Gene Therapy Trials for Wet Age-Related Macular Degeneration
Research NewsAfter a series of failed trials, current research suggests that the next generation of gene therapies for wet age-related macular degeneration holds promise. Learn how investigators are inducing the body’s cells to administer their own therapeutic response to disease activity.
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Press Releases from the Foundation Fighting Blindness.
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FFB’s Valued Partners
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Research News
Thanks to recent advances in stem cell research, we are getting closer to replacing cells in the retina lost to diseases such as retinitis pigmentosa and age-related macular degeneration.
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Disease
Mutations in CRB1 are a relatively common cause of several inherited retinal degenerations, including: Leber congenital amaurosis (LCA) retinitis pigmentosa (RP), and macular dystrophy (MD).
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Life as a Teen with Retinitis Pigmentosa
Beacon StoriesAt a mere 15 years old, Ava Ruggiero’s world shifted when she received a diagnosis of retinitis pigmentosa. As Ava continues to find balance as a student and athlete, she discusses the challenges of navigating her diagnosis alongside her parents, Joseph and Stephanie.
