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Displaying 291–300 of 851 results for “vision connection”
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Turning RP into a Canvas of Hope
Beacon StoriesDiagnosed with retinitis pigmentosa (RP) at 12, Raquel spent years navigating vision loss without support. But everything changed when she connected with the Foundation Fighting Blindness — and found not just answers, but community. Now an artist, advocate, and leader in San Diego, Raquel uses her story and her art as the founder of Unblurred Collection to raise awareness, give back, and inspire others living with blinding diseases.
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Advocacy Foundation News
Chairwoman Capito, Ranking Member Baldwin, and members of the Senate Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee, the Foundation Fighting Blindness appreciates the opportunity to provide written testimony to the subcommittee as an outside witness.
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Resources for individuals to use to contact their congress members about the policy changes with NIH.
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Exploring mental health resources can be a crucial first step in finding the support you need when diagnosed with vision loss – trusted organizations, platforms, and services that offer tools and guidance tailored to the blind and low vision community.
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Beacon Stories
Danielle has been navigating her retinitis pigmentosa for half of her life, but she’s never let it hold her back. Her journey with RP underscores the importance of perspective, community of her friends and family’s support, and the relentless pursuit of treatments and cures.
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Foundation Forums | Arizona Visionaries
Arizona Visionaries provides a virtual platform for professionals serving the blind and low vision community in Phoenix and surrounding areas to showcase services and other resources.
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Beacon Doses First Patient in its Phase 2/3 VISTA Clinical Trial for XLRP Gene Therapy
Research NewsThe company plans to apply for regulatory approval for the gene therapy with data from VISTA and its earlier clinical trials.
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ARVO 2024 Highlight: Positive Two-Year Results from PDE6B Gene Therapy Clinical Trial
Research NewsMutations in PDE6B are a leading cause of retinitis pigmentosa.
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Research News
The company plans to begin a Phase 2/3 clinical trial for the treatment during the first half of 2024.
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Foundation Fighting Blindness Launches GYROS, a Natural History Study for People with Gyrate Atrophy
Foundation NewsGyrate atrophy is an inherited retinal disease—causing progressive vision loss. GYROS results will help researchers design clinical trials for an emerging gyrate atrophy gene therapy.
