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Displaying 221–230 of 894 results for “vision connection”
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Foundation News
ARPA-H award establishes multi-disciplinary consortium of industry experts to address current limitations and advance innovative technologies for vision-restoring whole eye transplantation.
Goal to bring light to those who are blind through first-ever successful vision recovery in six whole eye transplants in humans by 2030.
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Woodburning Gives DeafBlind Artist Purpose
Beacon StoriesKrista Webb has embraced woodburning as a creative outlet to cope with her progressive vision loss due to Usher syndrome. And Krista has built a supportive community on Instagram, where she shares her art and advocates for the blindness community.
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What Does “Blindness” Really Mean?
Beacon StoriesJenny Schisler has retinitis pigmentosa. Jenny wants to spread awareness of what having a visual impairment really means to her and others affected by retinal degenerative diseases.
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SeeShore Fest Fundraiser Success
Beacon StoriesHeather Napolitano started her DIY fundraiser, SeeShore Fest, seven years ago. The event has now raised over $109,000 to fund research finding treatments and cures for blinding diseases.
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Beacon Stories
From stargazing to bird watching, Michael has been an enthusiast of all things science from the age of 12. When Michael was diagnosed with retinitis pigmentosa at 30 years old, he knew he wasn’t going to give up his dream of becoming a record-setting birder. In his own words, Michael shares how he’s overcome his vision loss and continued to pursue his birding passions with “birding-by-ear.”
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Managing Your Mindset, Embracing Your Voice
WellnessCharity’s recent rapid decline in vision due to RP and her daughter’s diagnosis with RP has caused her to open up about her vision loss journey. After getting involved with the Foundation, Charity now feels like she has a voice to help others in the visually impaired community.
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Full Transcript - 2019 Investing in Cures Summit - March 2, 2019
Full Session Transcripts of the 2019 Investing in Cures Summit.
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Disease
Best disease is an inherited retinal disease, which causes macular degeneration and loss of central vision, visual acuity, and color perception.
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Research News
Investigational LUXTURNA has the potential to be both the first pharmacologic treatment for an inherited retinal disease (IRD) and the first gene therapy for a genetic disease in the United States
First adeno-associated viral (AAV) vector investigational candidate to reach this stage of FDA review
Investigational LUXTURNA clinical program includes up to four years of efficacy data, with observation ongoing
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ARVO 2016: Choroideremia Gene Therapy in Clinical Trial Continues to Perform Well
Research NewsFive of six patients in NightStaRx’s choroideremia gene-therapy trial continue to benefit from the treatment.
