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Foundation Fighting Blindness to Host National Virtual VisionWalk
Foundation NewsThe Spring Virtual VisionWalk on June 12th will raise awareness and fund research finding treatments and cures for blinding retinal diseases.
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Foundation Fighting Blindness Applauds Introduction of LOANS for Biomedical Research Act
Foundation NewsLegislation provides innovative financing for clinical trials stalled by COVID-19 pandemic.
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Foundation Fighting Blindness and Usher 1F Collaborative to Launch Natural History Study
Foundation NewsThe project will help identify outcome measures for future clinical trials of potential USH1F therapies.
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Foundation Fighting Blindness Launches Chapter Program Rebrand
Foundation NewsThe program honors Lulie Gund and her legacy and commitment to the Foundation’s Chapter community.
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Foundation News
In honor of Rare Disease Day, this February 28th virtual event will raise awareness and fund research leading to treatments and cures for blinding retinal diseases.
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Foundation Fighting Blindness Launches ShopFightingBlindness.org
Foundation NewsThis official store offers branded apparel and merchandise designed to spread awareness and raise funds for the Foundation’s mission.
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Foundation Fighting Blindness Commits $6.5 Million for New Retinal Disease Research Grants
Foundation NewsNew grants include development of CRISPR/Cas9 gene-editing treatments, new disease models, and a retinal regeneration therapy
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Beacon Stories My Retina Tracker Patient Stories
Allen has always wanted to be known as an artist, first and foremost. His photography hints at the ever-changing nature of people’s lives and their environment, much like his own progression with retinitis pigmentosa (RP).
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The VISIONS Team is working hard to secure the best science, information and lifestyle speakers for the visually impaired community. As more speakers are confirmed, we will list their name and information here, so check back often!
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Proceed with Caution as Cell-Based Retinal Disease Therapies Show Promise.
In recent years, the number of stem cell treatments offered by various clinics claiming to benefit retinal eye disease has increased. Of concern, are those clinics administering stem cell-based therapies that do not adhere to the U.S. Food and Drug Administration’s (FDA) standards. Recently, a federal court ruled that the FDA has regulatory authority over stem cell procedures and has the power to halt them, even if the stem cells originate from the participating patient.
