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Displaying 671–680 of 1079 results
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Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
NewsSofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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Beacon Stories
Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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First Patient Receives Emerging CRISPR Therapy in Clinical Trial for LCA 10
Research NewsFirst time emerging CRISPR therapy administered inside the human body
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ARVO 2014: LCA Gene Therapy Recipient Featured During Keynote
Research News15-year-old Yannick Duwe transfixed the audience, describing how the treatment enabled him to use a computer instead of Braille, and work much easier and faster at school.
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The VISIONS Team is working hard to secure the best science, information and lifestyle speakers for the visually impaired community. As more speakers are confirmed, we will list their name and information here, so check back often!
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Researchers Report Six-Month Results from Biogen-Sponsored XLRP Gene Therapy Clinical Trial
Research NewsVision improvements observed with medium and high doses
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The Foundation Fighting Blindness invites you to take advantage of the wonderful opportunity to sponsor or exhibit at VISIONS 2020.
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Beacon Stories
This is a father’s story on the night that changed his and his family’s life forever.
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Beacon Stories
“If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”
