Search
Displaying 11–20 of 1146 results
-
Beacon Stories
Runner, storyteller, and community builder — Eavan O’Neill turned her Stargardt disease diagnosis into a mission to connect and uplift others through her own lived experiences. Through Brightside, she’s redefining what it means to live boldly and authentically with vision loss.
-
Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara
Eye on the CureDr. Dalkara is a research director at INSERM in France and works on therapies for people with retinitis pigmentosa (RP).
-
Belite Bio to Seek FDA Approval for its Stargardt Disease Drug
Research NewsTinlarebant slowed disease progression by 36 percent in the Dragon Phase 3 clinical trial.
-
My Journey with Retinitis Pigmentosa and the Foundation Fighting Blindness
Beacon StoriesZach was diagnosed with Bardet-Biedl syndrome (BBS) through genetic testing from the Foundation’s My Retina Tracker® Program. Today, he is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
-
Answers at Last: How Genetic Testing Revealed Zach’s Bardet-Biedl Syndrome
Beacon StoriesFor years, Zach Lovell lived with vision loss that didn’t have a complete explanation. Genetic testing through the Foundation’s My Retina Tracker® Program revealed he had Bardet-Biedl syndrome (BBS), finally connecting decades of health challenges and bringing long-awaited clarity to him and his family. Today, Zach is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
-
Opus Genetics Launches Gene Therapy Clinical Trial for Best Disease
Research NewsThe Foundation funded preclinical studies for the approach and launched Opus.
-
Eye on the Cure Podcast | Episode 95: Greta Streimikyte
Eye on the CureGreta is a blind para-athletic running champion from Ireland.
-
Foundation Fighting Blindness Provides Public Access to Data From its RUSH2A Natural History Study
Foundation NewsRUSH2A has captured extensive data over four years from patients with USH2A mutations causing non-syndromic retinitis pigmentosa and Usher syndrome type 2A.
-
Where Sight Fades, Music Begins
Invisible DisabilityBlindness isn’t always visible. It isn’t all or nothing because vision loss is a spectrum, but when I play, the music fills in what sight can not. It gives shape to what’s fading.
-
7 Tips For Preparing For Your First Therapy Session
WellnessWhether you’re new to therapy or starting over, here’s how to prepare for a first session with a new therapist.
.png)
.png)
