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Every voice strengthens our movement. By joining our advocacy network, you’ll receive updates on the latest policy developments, alerts when action is needed, and stories of impact from advocates nationwide. Together, we can shape policies that accelerate treatment and cures, and improve the lives of millions living with blinding diseases.
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The Foundation Fighting Blindness Advocacy in Focus highlights how we bring our mission into the policy arena, shaping decisions and empowering our community to create lasting change.
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Usher Syndrome Patient Focused Drug Development Meeting
The goal of the meeting will be to educate FDA staff and other key stakeholders such as biotech and pharmaceutical companies about what it is like to live with Usher syndrom, with perspectives from both affected individuals as well as caregivers and family members of affected individuals.
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Beacon's emerging XLRP gene therapy improves low-light vision in phase 3 trial
Research NewsBeacon plans to begin a rolling FDA submission for laru-zova later this year
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Nanoscope’s investigational RP treatment MOGENRY advances toward FDA approval
Research NewsOne-time injection could treat RP patients regardless of underlying genetic mutation
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Invisible Disability
C.J. Rodriguez opens up about life with retinitis pigmentosa and showcasing his experience through characters in his book, Bloom of the Huntresses.
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What You Cannot See Through a Mothers Eyes
Invisible DisabilityA mothers perspective on her infant sons journey with bilateral congenital cataracts.
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Leber Congenital Amaurosis Research Advances
Research NewsRecent developments in research on Leber congenital amaurosis.
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Retinitis Pigmentosa Research Advances
Research NewsRecent developments in research for retinitis pigmentosa treatments.
