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Displaying 1–10 of 43 news results
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Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
Sofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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People with disabilities are no different from anyone else. We all have strengths and challenges, and we all seek to be fully engaged in society. Treating blind people differently, either as incapable of conducting everyday tasks in life, or conversely, acting as though our ability to conduct even the most mundane chore is remarkable can be discouraging.
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Foundation Fighting Blindness InSights Forum Call
The Foundation Fighting Blindness is pleased to provide an audio recording and full transcripts of the Insights Forum, our quarterly conference call providing updates to the inherited retinal disease community. The call took place on January 31, 2020.
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My Retina Tracker Program is the highest volume IRD genetic testing program in the U.S.
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7th Annual Retinal Cell and Gene Therapy Innovation Summit
Please note that the seventh annual Retinal Cell and Gene Therapy Innovation Summit previously scheduled for Friday, May 1st, 2020 in Baltimore, Maryland has been cancelled.
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VISIONS 2020 Conference registration now open
The Foundation Fighting Blindness VISIONS 2020 conference will be held on June 18-20th at the Hyatt Regency Minneapolis.
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“It was important to me to make an everyday kid a hero”
Author Ben Shaberman talks to Optometry Today about how families affected by blindness helped to inspire his new novel, Retina Boy
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Foundation Fighting Blindness Celebrates 15th Year of VisionWalk with New Branding
This signature fundraising event has raised more than $55 million for research leading to treatments and cures for blindness.
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Offer support to patients with inherited eye diseases
While genetic testing can direct treatment and identify those at risk, it is important to have support available when patients test positive.
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Returning the favor: Never too late to give back as a premium surgeon
Whether local or international, through donation of services or funds, there is a way for everyone to give back.
