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Displaying 71–80 of 585 for “Retinitis pigmentosa”
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A Gene Therapy Primer for People with Inherited Retinal Diseases
Research NewsEverything patients and families want to know about gene therapy…and a little bit more
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Original Foundation Advocate Gertrude Weiss Celebrates 100th Birthday
Beacon StoriesGertrude Weiss was one of the early Foundation Fighting Blindness investors and advocates. Diagnosed with retinitis pigmentosa, Gertrude continues to live her life to the fullest. As a longtime friend, the Foundation honored Gertrude on her 100th birthday recently.
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Legally Blind Artist Paul Castle Expresses His Story through Art
Beacon StoriesPaul Castle was diagnosed with X-linked retinitis pigmentosa at the age of 16, but continued to follow his passion for art. Now Paul is a full-time artist and donates 5 percent of his art sales to the Foundation.
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An FFB Board Member’s Perspective on Her Experience with Acupuncture
Beacon StoriesMoira Shea describes her experience with acupuncture.
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Fundraiser Success Stories
Lindsey Blankenship, president of the Foundation Fighting Blindness Colorado Chapter, has created a one-of-a-kind Raising Our Sights Event. Wine for a Cure aims to spread awareness and fundraise on behalf of the Foundation Fighting Blindness with two signature wines from the Oregon Winery, Stoller Family Estates. The featured wines are a Chardonnay named “Variant” and a Pinot Noir named “Pigmentosa.”
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My Retina Tracker Genetic Testing Program
The Foundation Fighting Blindness, in partnership with PreventionGenetics and InformedDNA®, offers an open access, no-cost genetic testing program called the My Retina Tracker® Genetic Testing Program.
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Beacon Stories
Maggie grew up watching her mom navigate retinitis pigmentosa (RP), shaping her understanding of how vision loss affects entire families. Today, she uses her voice to raise awareness, support research, and help others affected by blinding diseases feel less alone.
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“Asking for Help Is Not a Weakness”
Beacon StoriesAlthough signs of retinitis pigmentosa (RP) began much earlier, Marcela San Miguel Cantu wasn’t diagnosed until age 40 and only later came to fully understand how her vision was changing. Through asking for help and connecting with others, she found support, community, and hope for the future.
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Nanoscope’s investigational RP treatment MOGENRY advances toward FDA approval
Research NewsOne-time injection could treat RP patients regardless of underlying genetic mutation
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Invisible Disability
C.J. Rodriguez opens up about life with retinitis pigmentosa and showcasing his experience through characters in his book, Bloom of the Huntresses.
