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Displaying 71–80 of 573 for “Retinitis pigmentosa”
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A Legacy of Strength, Adaptability, and Generosity: Richard and Elizabeth Kamis
Beacon StoriesRichard and Elizabeth built a life rooted in resilience, service, and generosity, with Richard’s experience living with retinitis pigmentosa shaping their shared purpose. From breaking barriers in education to helping others, their impact continues to help advance research for generations to come.
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Foundation Fighting Blindness Appoints Jason Morris as Board Chair
Foundation NewsLongtime Board member, parent advocate, and business executive slated to guide next phase of the organization’s growth and mission, effective immediately.
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Foundation News
The event will feature presentations from leading experts in stem cell therapies, cellular imaging, and the latest clinical developments in the treatment of inherited retinal diseases and age-related macular degeneration.
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Seeing Science Through a Cellular Lens
Beacon StoriesOn International Day of Women and Girls in Science, meet Jillian Pearring, PhD, a Foundation Fighting Blindness–funded researcher whose work on photoreceptors and retinitis pigmentosa is helping advance treatments and cures for blinding diseases.
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Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara
Eye on the CureDr. Dalkara is a research director at INSERM in France and works on therapies for people with retinitis pigmentosa (RP).
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A Family United: Thomas’ Hero’s Journey with CRB1
Beacon StoriesWhen Becky’s son Thomas was diagnosed with a rare CRB1-associated disease, their family’s world changed. But today, Becky and Thomas are embracing advocacy, community, and research as they work to raise awareness and fuel progress toward treatments and cures.
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Nacuity’s Antioxidative Therapy NACA Performs Encouragingly in Phase 1/2 Clinical Trial
Research NewsNACA is a gene-agnostic, oral medication designed to preserve vision in people with retinitis pigmentosa and Usher syndrome.
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VISIONS 2026: United in Vision Schedule
The United in Vision 2026 conference unites two prestigious events—the Foundation Fighting Blindness VISIONS conference and the Retina International World Congress—into one extraordinary global gathering. Scheduled from Wednesday, June 10 to Saturday, June 13, 2026, at the Fort Worth Convention Center in Fort Worth, Texas,
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Turning RP into a Canvas of Hope
Beacon Stories WellnessDiagnosed with retinitis pigmentosa (RP) at 12, Raquel spent years navigating vision loss without support. But everything changed when she connected with the Foundation Fighting Blindness — and found not just answers, but community. Now an artist, advocate, and leader in San Diego, Raquel uses her story and her art as the founder of Unblurred Collection to raise awareness, give back, and inspire others living with blinding diseases.
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Advocacy Foundation News
Jason Menzo Urges Robust FY2026 Funding for National Eye Institute and Protection of Its Independent Status.
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