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Displaying 611–620 of 762 for “retinitis clinical trial”
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Low Vision, High Hopes: My Journey with Stargardt Disease
Invisible DisabilityFor most of my life, I carried my vision loss quietly and invisibly. Vision is not only what we see. It is what we dare to believe is possible. And when that belief meets support, community, and opportunity — lives change.
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Eye on the Cure Podcast | Episode 98: Jonathan & Josh Steinberg
Eye on the CureJosh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family’s journey with Josh’s vision loss.
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Excerpt from Never Seen the Stars by Kate Korsh
Invisible DisabilityRead an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.
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Answers at Last: How Genetic Testing Revealed Zach’s Bardet-Biedl Syndrome
Beacon StoriesFor years, Zach Lovell lived with vision loss that didn’t have a complete explanation. Genetic testing through the Foundation’s My Retina Tracker® Program revealed he had Bardet-Biedl syndrome (BBS), finally connecting decades of health challenges and bringing long-awaited clarity to him and his family. Today, Zach is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Eye on the Cure Podcast | Episode 94: Dr. Victoria Claire
Eye on the CureDr. Claire is a blind professional artist in contemporary sculpture.
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Films & Documentaries Showcase
Celebrating the powerful stories of individuals in the blind and low vision community through the art of film.
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Connecting and Empowering the Stargardt Community
A collaborative initiative from the Foundation Fighting Blindness and Alkeus Pharmaceuticals, bringing together education, storytelling, and shared experiences to inform and inspire those living with Stargardt disease.
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Letter to House Energy & Commerce Committee regarding H.R.1262, the Give Kids a Chance Act.
Advocacy Research NewsOn behalf of the Foundation Fighting Blindness and the millions of Americans impacted by inherited retinal diseases (IRDs), we urge you to advance H.R.1262, the Give Kids a Chance Act, and reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program.
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Eye on the Cure Podcast | Episode 91: Dr. George Magrath
Eye on the CureDr. George Magrath is the CEO of Opus Genetics, a clinical-stage biopharmaceutical company developing gene and small molecule therapies for vision-threatening eye diseases.
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Invisible Disability
When I walk around the neighborhood with my white cane, I still worry about stigma and how people perceive me. I’ve had to remind myself that the cane is a tool to keep me safe.
