Search
Displaying 611–620 of 714 for “retinal diseases”
-
Chicago Chapter Leadership Meeting (December)
- Dec 3, 2026
- 12:00 p.m. - 1:00 p.m. (CDT)
- Virtual
Community EventJoin us for our upcoming Chicago Chapter Meeting as we come together to connect, share updates, and continue driving progress toward treatments and cures for blinding diseases.
-
Chicago Chapter Leadership Meeting (October)
- Oct 1, 2026
- 12:00 p.m. - 1:00 p.m. (CDT)
- Virtual
Community EventJoin us for our upcoming Chicago Chapter Meeting as we come together to connect, share updates, and continue driving progress toward treatments and cures for blinding diseases.
-
Cincinnati/Northern Kentucky Vision Connection
- Sep 2, 2026
- 5:30 p.m. - 7:30 p.m. (EDT)
- 3301 Madison Rd, Cincinnati, OH 45209
Community EventJoin the Foundation Fighting Blindness for Vision Connection, an enriching and supportive gathering across the Foundation Chapter network for the blind and low vision community.
-
Chicago Chapter Leadership Meeting (August)
- Aug 13, 2026
- 12:00 p.m. - 1:00 p.m. (CDT)
- Virtual
Community EventJoin us for our upcoming Chicago Chapter Meeting as we come together to connect, share updates, and continue driving progress toward treatments and cures for blinding diseases.
-
The Clinical Trial That Opened His World
Beacon StoriesAfter decades of adapting to vision loss from retinitis pigmentosa (RP), Manny Fernandez became one of the first people to receive an experimental gene therapy in a clinical trial. The experience not only restored a small part of his peripheral vision but also renewed his hope for the future and inspired him to encourage others to consider clinical trials, too.
-
Taking the Stage for Stargardt
Beacon StoriesDiagnosed with Stargardt disease at age nine, Havah Fleisner spent years feeling isolated by her vision loss before discovering confidence through pageantry and advocacy. Now, as Miss Northern Lights Teen 2026, she’s using her platform to create community, raise awareness, and inspire others living with blinding diseases.
-
A Legacy of Strength, Adaptability, and Generosity: Richard and Elizabeth Kamis
Beacon StoriesRichard and Elizabeth built a life rooted in resilience, service, and generosity, with Richard’s experience living with retinitis pigmentosa shaping their shared purpose. From breaking barriers in education to helping others, their impact continues to help advance research for generations to come.
-
From Hiding to Helping: How Cory Turned Vision Loss Into a Life With No Limits
Beacon StoriesAfter years of hiding his vision loss, Cory Rainford now uses his voice to help others navigate life with choroideremia. As his blinding disease progressed, he worked hard to keep it invisible, even leaving his dream job. Today, through his YouTube channel Legally Blind No Limits, Cory shares honest, humorous videos about adapting and finding community, showing others that life with vision loss can still be full of possibilities.
-
Octant Bio Begins Clinical Testing Oral Treatment for Rhodopsin-Related Retinitis Pigmentosa
Research NewsFirst-of-its-kind small molecule therapy targets protein misfolding at the root of RHO-adRP
-
Hope Is Right Around the Corner
Beacon StoriesRosana was diagnosed with age-related macular degeneration (AMD) at 43, which would eventually cost her a pilot’s license, a driver’s license, and the independence she had always defined herself by. Rather than retreat, she adapted, moving closer to the beach, riding tandem bikes, and finding community through the Foundation Fighting Blindness. Today, she channels her experience with AMD into advocacy, driven by the belief that hope—and continued progress toward treatments and cures—are very much within reach.
