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Displaying 601–610 of 762 for “retinitis clinical trial”
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Lighting a Candle: The Author of a New Memoir Shares the Highs and Lows of Vision Loss
Beacon StoriesNicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
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Just How Tricky Halloween Can Be
Beacon StoriesFor those with night blindness, a symptom of many retinal diseases, most notably retinitis pigmentosa, or RP, navigating a trick-or-treating throng can be, well, a nightmare.
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Alice Bartlett – Back on That Horse
Beacon StoriesHis name is Battle. He’s an Arabian, stands more than 15 hands (or 5 feet) tall and weighs 1,000 pounds. He’s been with Alice Bartlett since his birth 26 years ago, and she’s been riding him since he was 2.
Alice, by the way, is legally blind.
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RetNet: A Web-Based Guide to Every Retinal Disease Gene Known to Man
Research NewsCheck out RetNet, the online catalogue of every known retinal degenerative disease gene.
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Research News
Thanks to recent advances in stem cell research, we are getting closer to replacing cells in the retina lost to diseases such as retinitis pigmentosa and age-related macular degeneration.
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Seeing the Whole Person: What Our Community Is Telling Us About Mental Health and Vision Loss
WellnessTwo new surveys, one from people living with blinding diseases and one from the therapists trained to support them, point to the same conclusion: specialized mental health care matters, and the Foundation Fighting Blindness community wants more of it.
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Research News
2020 Llura Liggett Gund Award recipient honored for pioneering gene therapy that transformed vision research.
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More Than What You See: Navigating Vision Loss and Mental Health
Beacon Stories WellnessAt 25, Austin experienced sudden vision changes that led to a diagnosis of Usher syndrome type 2A, reshaping how he moved through the world and how he saw his future. The emotional impact of this vision loss affected his mental health, leading to isolation before he began to openly process his experience and seek connection. Today, he uses his journey to inspire Rare Perspective Co., creating space for more open conversations and understanding around vision loss.
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Meet Teddy: A Guide Dog Helping Navigate Life with Vision Loss
Invisible DisabilityIn honor of International Guide Dog Day, we’re spotlighting the life-changing partnership between people living with vision loss and their guide dogs, through the eyes of one very special dog.
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From Hiding to Helping: How Cory Turned Vision Loss Into a Life With No Limits
Beacon StoriesAfter years of hiding his vision loss, Cory Rainford now uses his voice to help others navigate life with choroideremia. As his blinding disease progressed, he worked hard to keep it invisible, even leaving his dream job. Today, through his YouTube channel Legally Blind No Limits, Cory shares honest, humorous videos about adapting and finding community, showing others that life with vision loss can still be full of possibilities.
