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Displaying 51–60 of 532 for “Retinitis pigmentosa”
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Fundraiser Success Stories
Lindsey Blankenship, president of the Foundation Fighting Blindness Colorado Chapter, has created a one-of-a-kind Raising Our Sights Event. Wine for a Cure aims to spread awareness and fundraise on behalf of the Foundation Fighting Blindness with two signature wines from the Oregon Winery, Stoller Family Estates. The featured wines are a Chardonnay named “Variant” and a Pinot Noir named “Pigmentosa.”
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My Retina Tracker Genetic Testing Program
The Foundation Fighting Blindness, in partnership with PreventionGenetics and InformedDNA®, offers an open access, no-cost genetic testing program called the My Retina Tracker® Genetic Testing Program.
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A Family United: Thomas’ Hero’s Journey with CRB1
Beacon StoriesWhen Becky’s son Thomas was diagnosed with a rare CRB1-associated disease, their family’s world changed. But today, Becky and Thomas are embracing advocacy, community, and research as they work to raise awareness and fuel progress toward treatments and cures.
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Nacuity’s Antioxidative Therapy NACA Performs Encouragingly in Phase 1/2 Clinical Trial
Research NewsNACA is a gene-agnostic, oral medication designed to preserve vision in people with retinitis pigmentosa and Usher syndrome.
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Turning RP into a Canvas of Hope
Beacon StoriesDiagnosed with retinitis pigmentosa (RP) at 12, Raquel spent years navigating vision loss without support. But everything changed when she connected with the Foundation Fighting Blindness — and found not just answers, but community. Now an artist, advocate, and leader in San Diego, Raquel uses her story and her art as the founder of Unblurred Collection to raise awareness, give back, and inspire others living with blinding diseases.
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Advocacy Foundation News
Jason Menzo Urges Robust FY2026 Funding for National Eye Institute and Protection of Its Independent Status.
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Advocacy Foundation News
Chairwoman Capito, Ranking Member Baldwin, and members of the Senate Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee, the Foundation Fighting Blindness appreciates the opportunity to provide written testimony to the subcommittee as an outside witness.
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Eye on the Cure Podcast | Episode 86: Lenore von Krusenstiern, MD, PhD
Eye on the CureDr. Lenore von Krusenstiern talks about Bluerock’s clinical trial for a photoreceptor replacement therapy for people with inherited retinal conditions such as retinitis pigmentosa and cone-rod dystrophy.
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Beacon Stories
Danielle has been navigating her retinitis pigmentosa for half of her life, but she’s never let it hold her back. Her journey with RP underscores the importance of perspective, community of her friends and family’s support, and the relentless pursuit of treatments and cures.
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Neurotech’s Encapsulated Cell Technology Receives FDA Approval for Treatment of MacTel
Research NewsThe technology was previously funded by the Foundation for the treatment of retinitis pigmentosa and dry age-related macular degeneration.
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