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Displaying 511–520 of 689 for “retinitis clinical trial”
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Beacon Stories
Foundation Arizona chapter president Fai Mo is sharing, in his own words, his experiences with being diagnosed with retinitis pigmentosa and how he found comfort in the Foundation Fighting Blindness community.
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Beacon Stories
At the age of five, Livie was diagnosed with LCA but her doctor immediately told her parents that clinical trials were underway and that Livie could soon be eligible for treatment. Not long after, they got a phone call from Spark Therapeutics and Livie received LUXTURNA®. Now eight, Livie’s confidence is at an all-time high with her “new eyes.”
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Covid Revealed What Science Can Do When Funding is Found
In the Press‘In some ways, the pandemic ought to make us all feel more upbeat about the long-term future of medical research.’
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Seeing Through Your Disability
Beacon Stories30-year-old Lance Johnson is a video editor and podcaster living in Brooklyn, New York. Despite being diagnosed with retinitis pigmentosa (RP) at a young age, Lance has never let his RP change his drive and passion for creating.
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Beacon Stories
The faces behind RP Hope, Save Sight Now, and Sofia Sees Hope are all immensely dedicated to their nonprofit’s missions. The inspiration behind these organizations is similar, but their story and commitment are uniquely personal.
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Beacon Stories
From stargazing to bird watching, Michael has been an enthusiast of all things science from the age of 12. When Michael was diagnosed with retinitis pigmentosa at 30 years old, he knew he wasn’t going to give up his dream of becoming a record-setting birder. In his own words, Michael shares how he’s overcome his vision loss and continued to pursue his birding passions with “birding-by-ear.”
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Sample letter for contacting your Member in the House
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Foundation News
The free webinar for eye care professionals, on June 21, will feature some of the intriguing and innovative research efforts underway for inherited retinal diseases and AMD.
An overview of the Foundation’s no-cost genetic testing program will also be presented.
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The Foundation’s best-in-class genetic testing program enables any eye care professional in the US to order no-cost genetic testing through the Foundation’s My Retina Tracker Program and genetic counseling for patients clinically diagnosed with an IRD.
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“Together, We’re Winning” the Fight Against Blinding Diseases
Foundation NewsFoundation Fighting Blindness Launches New Campaign
