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Displaying 41–50 of 532 for “Retinitis pigmentosa”
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Foundation Funds 25 New Grants Totaling $15.1 Million in FY23
Research NewsThe global leader in retinal degenerative disease research supports a total of 93 research grants in its portfolio.
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Recap of Retinal Disease News from the 2022 Meeting of the American Academy of Ophthalmology
Research NewsReports on emerging therapies for dry age-related macular degeneration (geographic atrophy), Stargardt disease, and X-linked retinitis pigmentosa are included
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Research News
The emerging therapy is designed to restore vision for people with advanced retinal degenerative diseases
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Learning to Fall After Vision Loss
Beacon StoriesWhen Justin’s vision loss progressed quickly due to retinitis pigmentosa at 25 years old, he thought skateboarding wouldn’t be possible anymore. Ten years later, with the help of his white cane and audio devices, Justin is now working to enhance accessibility in skateboarding for the blind and visually impaired community.
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Erin’s Unwavering Determination, Then and Now
Beacon StoriesDiagnosed with retinitis pigmentosa at a very young age, growing up, Erin never let her progressive vision loss stop her from keeping up with her friends and siblings. Throughout the 1990s, Erin was featured in several Foundation Fighting Blindness campaigns to raise funds for retinal research. Today, 34-year-old Erin is resilient as ever, still hopeful research will one day find her a cure.
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Beacon Stories
Jenny was diagnosed with retinitis pigmentosa (RP), just like her mom, at the age of 34. In her own words, Jenny shares her experience with being diagnosed with RP and her journey to accepting it with hopefulness.
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A Gene Therapy Primer for People with Inherited Retinal Diseases
Research NewsEverything patients and families want to know about gene therapy…and a little bit more
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Original Foundation Advocate Gertrude Weiss Celebrates 100th Birthday
Beacon StoriesGertrude Weiss was one of the early Foundation Fighting Blindness investors and advocates. Diagnosed with retinitis pigmentosa, Gertrude continues to live her life to the fullest. As a longtime friend, the Foundation honored Gertrude on her 100th birthday recently.
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Legally Blind Artist Paul Castle Expresses His Story through Art
Beacon StoriesPaul Castle was diagnosed with X-linked retinitis pigmentosa at the age of 16, but continued to follow his passion for art. Now Paul is a full-time artist and donates 5 percent of his art sales to the Foundation.
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An FFB Board Member’s Perspective on Her Experience with Acupuncture
Beacon StoriesMoira Shea describes her experience with acupuncture.
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