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Displaying 381–390 of 689 for “retinitis clinical trial”
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Foundation News
The Foundation Fighting Blindness develops strategic partnership with Alma, a network of 25,000 mental health professionals dedicated to simplifying access to high-quality, affordable mental healthcare.
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Building Bonds: Joy and Representation in Legos
Beacon StoriesIn her own words, Chloe shares how her bond with her brother Elliot has grown stronger over the years through their shared love of building Legos. Since Elliot’s diagnosis with Stargardt disease, he has faced significant vision loss, but they discovered accessible online Lego instructions, allowing them to continue their cherished hobby. Chloe hopes for a more accessible and understanding world where Elliot and others with vision loss can thrive.
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Foundation News
With nearly two decades of leadership in vision and neuroscience research and a committed tenure with the Foundation, Dr. Laster will spearhead the Foundation’s scientific strategy in her new role.
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Foundation Fighting Blindness Celebrates 20 Years of VisionWalk
Foundation NewsVisionWalk has been uniting communities across the country for 20 years, all while raising awareness and funding research driving treatments and cures for blinding diseases.
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Staying True to Music, Family, and Advocacy
Beacon StoriesMusic duo Andrew & Polly have earned a GRAMMY nomination for their children’s album “Ahhhhh!” while also championing disability awareness and inclusivity. Andrew’s experience with Stargardt disease fuels their advocacy, inspiring others through their music, podcast, and dedication to research and community support.
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Foundation Fighting Blindness Comments on Proposed NIH Reforms
Foundation NewsThe Foundation responds to the U.S. House of Representatives Energy and Commerce Committee on the framework for reforming the National Institutes of Health
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Beacon Stories
Maverick, a determined and adventurous 10-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.
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A Vision of Hope and Light: Fai and Patrick’s Journey with the Foundation Fighting Blindness
Beacon Stories“Legacy giving is about carrying the torch for future generations,” Fai shares. “It’s about ensuring that one day, we can all celebrate victories over vision loss together.”
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ARVO 2024 Highlight: New Gene Linked to RP in People with African Ancestry
Research NewsThe discovery will help geneticists diagnose more RP patients with African descent.
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SalioGen Developing Novel Gene Insertion Therapy for Stargardt Disease
Research NewsThe company’s innovative Gene Coding™ platform enables seamless insertion of DNA into selective genomic locations.
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