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The goal of Envisioning a Path to Hope is to expand connections with eye care professionals all over the U.S. This important initiative will provide an opportunity for all of our volunteers and partners to share the Foundation with eye care professionals within their personal network.
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Jan 19, 2024
Eye on the Cure Podcast | Episode 60: Justin Kauflin
Justin Kauflin, a renowned jazz pianist who lost his vision as a boy, talks to host Ben Shaberman about his extensive touring, numerous collaborations, and close friendship with legendary trumpeter Clark Terry. Their story was captured in the hit documentary film Keep On Keepin’ On. Justin became a jazz pro at the age of 14, toured globally with Quincy Jones, and was voted jazz artist of the year by VEER magazine.
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Keeping us informed of your legacy intensions helps the Foundation Fighting Blindness plan our investments in retinal disease research.
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Live Stream: Dry AMD-Patient Focused Drug Development
The purpose of this meeting is to share with key FDA officials and other stakeholders the journey of dry AMD patients and their caregivers across the lifespan, current unmet needs, prognosis, and current standards of care. We invite you, people living with dry AMD and caregivers, to participate in a live discussion with drug developers, researchers, and regulators, as well as healthcare policy makers and payors for purposes of informing clinical trial design and benefit-risk decision making for evaluating and approving treatments for this disease.
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The Foundation encourages individuals and teams from all scientific disciplines that have ideas geared toward eliminating inherited retinal degenerative diseases to apply to a grant or award program. Individuals from underrepresented racial, ethnic, and gender groups, as well as individuals with disabilities, are always encouraged to apply.
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Jan 5, 2024
Eye on the Cure Podcast | Episode 59: Dr. Robert MacLaren
Dr. Robert MacLaren, a world-renowned retinal surgeon, clinical trial investigator, and research lab leader at the University of Oxford, talks to host Ben Shaberman about the successes and challenges in retinal gene therapy development and clinical trials, as well as advances in robotics for improving retinal surgery outcomes.
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Dec 15, 2023
Eye on the Cure Podcast | Episode 58: Jason Comander
Jason Comander, Md, PhD, clinical researcher, surgeon, and director of the Inherited Retinal Disease Disorders Service at Mass Eye and Ear, talks to host Ben Shaberman about his administration of LUXTURNA gene therapy to RPE65 patients, his team’s re-analysis of vitamin A therapy for retinitis pigmentosa, and passion for retinal research and patient care.
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Dec 11, 2023
Known as antisense oligonucleotides, the treatments performed encouragingly in ProQR’s clinical trials
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VISIONS 2024, the global conference of the Foundation Fighting Blindness, is a one-of-a-kind event in which individuals who are visually impaired, and their families, have the opportunity to hear about exciting advancements in blindness research.
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Dec 6, 2023
Recording Available: Foundation Insights Forum – November 30, 2023
The Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the inherited retinal disease community. The call took place on November 30, 2023.