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Apr 10, 2020
Why Science Is Closer Than You Think To Beating Blindness
Using high-tech, camera-equipped eyeglasses and a healthy pair of eyes with 20/20 vision located hundreds, maybe even thousands, of miles away, a blind New York attorney has help to navigate the city’s busy streets and broken sidewalks.
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Apr 1, 2020
Interim Results Released for USH2A RNA Therapy Clinical Trial
Suggestions of efficacy observed in 25 percent of participants receiving the treatment
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Mar 31, 2020
The Foundation Fighting Blindness is closely monitoring the COVID-19 situation and its impact on the IRD community.
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Mar 30, 2020
10 Things to Know Before You Fall Victim to a Retinal Stem Cell Scam
An article by David Gamm, MD, PhD, a Foundation-funded researcher at the University of Wisconsin-Madison
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Mar 12, 2020
Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
Sofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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Mar 5, 2020
First Patient Receives Emerging CRISPR Therapy in Clinical Trial for LCA 10
First time emerging CRISPR therapy administered inside the human body
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Mar 5, 2020
ARVO 2014: LCA Gene Therapy Recipient Featured During Keynote
15-year-old Yannick Duwe transfixed the audience, describing how the treatment enabled him to use a computer instead of Braille, and work much easier and faster at school.
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Feb 27, 2020
Researchers Report Six-Month Results from Biogen-Sponsored XLRP Gene Therapy Clinical Trial
Vision improvements observed with medium and high doses
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Feb 20, 2020
Foundation Joins the Institute for Gene Therapies, a Newly Formed Advocacy Organization
IGT to accelerate gene therapy development and patient access
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Feb 14, 2020
People with disabilities are no different from anyone else. We all have strengths and challenges, and we all seek to be fully engaged in society. Treating blind people differently, either as incapable of conducting everyday tasks in life, or conversely, acting as though our ability to conduct even the most mundane chore is remarkable can be discouraging.