Recent Foundation News
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A Race Against Blindness Commits $1 Million to Advance Gene-Agnostic Therapeutic Approaches
Foundation NewsThe commitment directs $775,000 to the RD Fund, to be matched dollar for dollar, and $225,000 to a Foundation Fighting Blindness research award, advancing approaches that can help patients regardless of the gene causing their retinal disease
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Foundation News
The award recognizes Dr. Pierce’s contributions to inherited retinal disease research, including work that led to the first FDA-approved gene therapy for an inherited disease and leadership of the world’s first in vivo CRISPR genome-editing study in humans.
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Foundation News
The gathering will be held June 12–13 and will convene global communities impacted by blinding diseases, alongside researchers, clinicians, patient advocates, and industry partners to foster collaboration, innovation, and hope.
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Recording Available: Insights Forum | Thursday, March 26, 2026
Foundation NewsThe Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on March 26, 2026.
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Foundation News
A new partnership with A Race Against Blindness brings a spring 2026 luxury vehicle fundraiser to support people living with RP and Bardet-Biedl syndrome.
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Foundation Fighting Blindness Appoints Jason Morris as Board Chair
Foundation NewsLongtime Board member, parent advocate, and business executive slated to guide next phase of the organization’s growth and mission, effective immediately.
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Foundation News
The event will feature presentations from leading experts in stem cell therapies, cellular imaging, and the latest clinical developments in the treatment of inherited retinal diseases and age-related macular degeneration.
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Honoring Karen Petrou: A Visionary Leader and Champion for the Community
Foundation NewsRemembering Karen Petrou, whose strategic vision, personal courage, and unwavering commitment helped shape the future of inherited retinal disease research.
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Foundation News
The May 14 event will convene leaders across industries to raise funds that advance treatments and cures for blinding diseases.
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Recording Available: Insights Forum | Friday, December 12, 2025
Foundation NewsThe Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on December 12, 2025.
