Quarterly Webinar: How to Talk to Your Eye Care Professional About Inherited Blinding Diseases
Saturday, December 13th, 2025, 12:00 p.m. (EST)
Join us for a free, informative webinar designed to empower patients, parents, and caregivers to have more productive and meaningful conversations with their eye doctors.
Get updates on Foundation Event
Location
VirtualDo you or a loved one live with an inherited blinding disease? Navigating appointments with eye care professionals can be complex, especially when discussing inherited retinal diseases. Knowing the right questions to ask and how to effectively communicate your needs and concerns is crucial for accessing the best care, participating in clinical trials, and discovering emerging treatments.
Our Speakers
We have gathered a panel with deep personal and professional expertise in inherited retinal degenerations:
- Jamie Cutler – A dedicated advocate and parent to a son with LCA5. As the chapter president of the Foundation Fighting Blindness Chicago chapter, Jamie shares a wealth of personal experience in seeking treatment and navigating the patient journey.
- Brenda Niccum – Chapter President of the Foundation Fort Wayne Chapter and an active research participant for retinitis pigmentosa (RP). Brenda brings a valuable perspective from both an advocacy and a clinical trial participant standpoint.
- Dr. Safa Rahmani, MD – A board-certified ophthalmologist specializing in pediatric retinal disease and inherited retinal degenerations. Dr. Rahmani was a leader in the first U.S.-approved gene therapy for Leber congenital amaurosis (LUXTURNA®) and serves as a retina specialist at Ann & Robert H. Lurie Children’s Hospital of Chicago.
What You Will Learn
- Key questions to ask your ophthalmologist or retina specialist.
- Tips for effective communication regarding symptoms, family history, and treatment goals.
- Understanding the importance of genetic testing and how to discuss results.
- Strategies for staying informed about clinical trials and new therapies.
