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May 19, 2020
Inherited Retinal Disease Genetic Testing Webinar-Workshop for Eye Care Professionals
Foundation NewsHosted by the Foundation Fighting Blindness, Blueprint Genetics, and InformedDNA June 4, 2020, 12:00 p.m.–1:30 p.m. ET
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May 4, 2020
#GivingTuesdayNow Featured Researcher Dr. Shannon Boye
Research NewsA Lifelong Science Nerd is Winning the Fight Against Blindness
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The VISIONS Team is working hard to secure the best science, information and lifestyle speakers for the visually impaired community. As more speakers are confirmed, we will list their name and information here, so check back often!
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Information for affected individuals and their families about the role of genetic counseling.
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Clinical Trials that are open now
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Jan 17, 2019
Pixium's PRIMA Bionic Vision System Restores Central Vision in Dry AMD Clinical Trial
Research NewsThe French bioelectronics company Pixium Vision has reported that its PRIMA bionic vision system has restored some central vision in patients with advanced dry age-related macular degeneration (AMD) participating in a clinical feasibility trial.
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DiseaseX-linked retinoschisis (XLRS) is an inherited retinal disease causing vision loss due to splitting of the layers of the retina.
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Leber Congenital Amaurosis (LCA)
DiseaseLCA is a group of inherited retinal diseases causing blindness or severe vision loss in early childhood.
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DiseaseOften diagnosed in childhood or adolescence, retinitis pigmentosa (RP) is an inherited retinal disease causing progressive loss of night and peripheral vision. The condition often leads to legal and sometimes complete blindness.
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Jan 9, 2018
A Retinal Research Nonprofit Paves the Way for Commercializing Gene Therapies
In the PressAN EMERGING, vision-restoring gene therapy for a devastating retinal disease is poised for Food and Drug Administration (FDA) approval. If it gets the regulatory nod, it will be the first gene therapy to receive FDA approval for the eye or an inherited condition.