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A Mother’s Vision of a More Inclusive World
Beacon Stories WellnessThis Mother’s Day, we’re celebrating Krystle — a beacon of creativity, courage, and community. Legally blind mom Krystle Boateng couldn’t find children’s books she could comfortably read to her sons, so she created her own. Through her publishing company, Inside Ability Books, she’s redefining accessibility in children’s books and empowering individuals and families navigating vision loss and other disabilities.
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Blind Advocate Triumphs as a Hockey Pioneer
Beacon StoriesJosh Schneider is a former teacher and student-athlete whose life took an unexpected turn due to an optic nerve condition. Years after receiving his diagnosis, Josh transformed his passion for sports into a platform for advocacy. Today, he thrives as a blind hockey player, defying expectations and leading two foundations committed to raising awareness and providing support to blind hockey players.
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Research News
The five-year grant will advance the emerging treatments toward clinical trials
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Penn Vet’s William Beltran Elected to the National Academy of Medicine
Research NewsThe veterinary researcher’s canine studies are advancing promising retinal therapies toward clinical trials
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Scientists Receive $25 Million to Develop a Vision-Restoring System that Connects to the Brain
Research NewsThe high-tech, vision-restoring system interfaces with the visual cortex, the back of the brain where visual input is processed to create the images we see.
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Vision Testing and Retinal Imaging in Clinical Trials: What Patients Can Expect
Research NewsBecause measuring changes is not always easy, people in clinical trials often undergo a number of different tests over one or several years. It can be challenging for the patient, but is necessary to determine if a treatment is working.
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Beacon Stories
Runner, storyteller, and community builder — Eavan O’Neill turned her Stargardt disease diagnosis into a mission to connect and uplift others through her own lived experiences. Through Brightside, she’s redefining what it means to live boldly and authentically with vision loss.
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Celebrating Genetic Counselor Awareness Day with Kristy Lee
Beacon StoriesOn Genetic Counselor Awareness Day, we celebrate the invaluable contributions of genetic counselors, whose dedication guides individuals through the complexities of genetic information, offering support, and fostering hope. We’re highlighting Kristy Lee, MS, CGC, whose work brings clarity for countless patients and families navigating genetic diseases.
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Birding Blind: Identifying Birds by Song
Beacon StoriesMartha Steele has been birding for over 30 years, but the way in which she birds has changed over time. Martha has Usher syndrome, with her central vision declining rapidly in the early 2000s and receiving her first cochlear implant in 2010. Now she birds entirely by ear and has learned the songs of about 150 bird species.
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Beacon Stories
Michael was matched with his first guide dog, Geo, a yellow Labrador retriever, in March 2020, two years after he applied with Guiding Eyes for the Blind. Michael and Geo now have a relationship unlike any other.
