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VISIONS 2026 Accessibility Apps
The Foundation Fighting Blindness highlights Be My Eyes, GoodMaps, and ReBokeh—three powerful apps designed to support independence and accessibility for the blindness and low vision community.
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Research News
Marking an important milestone for this rare form of retinitis pigmentosa (RP)
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Excerpt from Never Seen the Stars by Kate Korsh
Invisible DisabilityRead an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.
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Foundation News
Social media campaign to encourage personal story sharing to spread awareness about blinding diseases and empower involvement with the Foundation Fighting Blindness.
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The Foundation encourages individuals and teams from all scientific disciplines that have ideas geared toward eliminating inherited retinal degenerative diseases to apply to a grant or award program. Individuals from underrepresented racial, ethnic, and gender groups, as well as individuals with disabilities, are always encouraged to apply.
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SeeShore Fest Fundraiser Success
Beacon StoriesHeather Napolitano started her DIY fundraiser, SeeShore Fest, seven years ago. The event has now raised over $109,000 to fund research finding treatments and cures for blinding diseases.
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Foundation News
Trial recruitment is enabled by the Foundation Fighting Blindness’ patient registry, My Retina Tracker® Registry, which includes genetic and vision information for more than 20,000 people with inherited retinal diseases.
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Foundation News
In honor of Rare Disease Day, this February 28th virtual event will raise awareness and fund research leading to treatments and cures for blinding retinal diseases.
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Stargazer Pharmaceuticals Initiates a Phase 2a Clinical Trial for its Stargardt Disease Drug
In the PressThe Foundation Fighting Blindness Retinal Degeneration Fund is an investor in the company
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Brint Family Translational Research Award
The Brint Family Translational Research Program awards will accelerate the movement of preclinical research toward an Investigational New Drug filing and into clinical trials to provide a robust and diverse pipeline of potential therapies to fight inherited retinal degenerations (IRD) and dry age-related macular degeneration.
