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Beacon Stories
Lindsey Rambo once believed treatment was meant for someone else. Today, she’s the first participant in a groundbreaking gene therapy trial for LCA5—and her journey is lighting the way for what’s possible in the future of vision research.
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Foundation Funds 25 New Grants Totaling $15.1 Million in FY23
Research NewsThe global leader in retinal degenerative disease research supports a total of 93 research grants in its portfolio.
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Disease
Mutations in PRPH2 are a relatively common cause of several inherited retinal degenerations, including: retinitis pigmentosa (RP), pattern macular dystrophies (PMDs), cone-rod dystrophies (CRDs), and central areolar choroidal dystrophy (CACD).
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Over Thirty Presentations Highlighted during the 2022 Retinal Cell & Gene Therapy Innovation Summit
Research NewsIn its seventh year, the Retinal Cell & Gene Therapy Innovation Summit featured 34 presentations from industry experts from around the world.
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In Memoriam: Dr. Alan Laties – Early Leader in Retinal Research
Beacon StoriesAlan M. Laties, MD, passed away on Sunday, December 26 at the age of 90.
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Ambitious Swimmer Spreading Optimism
Beacon Stories26-year-old Becca is a two-time Paralympic swimmer for Team USA, diagnosed with Usher syndrome type 1 (USH1) at only four years old. But she has never let her diagnosis with Usher syndrome stop her from doing exactly what she puts her mind to.
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Funded Grants and Awards for Fiscal Year 2019 (July 1, 2018-June 30, 2019)
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Foundation News
Known as Pro-EYS, the study will help researchers design clinical trials for potential therapies
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Disease
Choroideremia is an inherited retinal disease that causes progressive vision loss due to degeneration of the choroid, the retinal pigment epithelium or RPE, and the photoreceptors.
