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Beacon Stories
Danielle has been navigating her retinitis pigmentosa for half of her life, but she’s never let it hold her back. Her journey with RP underscores the importance of perspective, community of her friends and family’s support, and the relentless pursuit of treatments and cures.
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Opus Genetics, Ocuphire Merger to Boost Advancement of Several IRD Gene Therapies
Research NewsMerger will provide additional capital for gene therapy development.
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Biologist and Father Dedicated to Daughter’s Cure
Beacon StoriesAfter Allison’s diagnosis with Usher syndrome type 3, her dad, Jeff Libby, wanted to do everything he could to find her a cure. As a biologist, Jeff started searching for organizations researching blinding diseases like Allison’s, and he found the Foundation Fighting Blindness.
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Atsena Therapeutics Developing X-Linked Retinoschisis Gene Therapy
Research NewsThe emerging gene therapy is being designed to more safely reach the fovea
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Al Linde “Keeps on Rolling” with Macular Degeneration
Beacon StoriesAl Linde has learned to “just roll with it” throughout his life to overcome many challenges.
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Choroideremia Gene Therapy Moves into Phase 3 Human Study
Research NewsNightstar Therapeutics, a retinal-disease, gene-therapy development company in the UK, is advancing its emerging gene therapy for choroideremia into a Phase 3 clinical trial known as STAR. The study will enroll approximately 140 patients at 18 clinical sites in the US, Europe, Canada, and South America.
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First Patient Treated in XLRP Gene Therapy Clinical Trial
Research NewsThe Nightstar gene therapy involves injection of healthy copies of RPGR underneath the retina.
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Curing Blindness, Part 2: Dick’s Story
Beacon StoriesStem-cell-based therapies – including those derived from a patient’s blood or skin – are among the many cutting-edge approaches to treatments the Foundation has funded for decades.
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There's More Than One Way to Correct a Genetic Defect
Research NewsA quick primer on genes and their critical role in building proteins.
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Shifting Perspectives—One Video at a Time
Beacon StoriesNatasha Caudill is a content creator and disability advocate who uses her platform of over 1.3 million TikTok followers to shift perceptions about blindness and achromatopsia. Through candid and educational videos, she invites others to experience the world through her eyes, literally in black and white. Her content reminds us that disability isn’t a limitation but simply a different and equally valuable way of experiencing the world.
