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ProQR Seeking to Partner Ophthalmic Programs
Research NewsThe company is halting its clinical programs for LCA10 and USH2A as it seeks a new partner
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Celebrating National DNA Day with Dr. Benjamin Bakall
Beacon StoriesApril 25 is National DNA Day, commemorating the completion of the Human Genome Project and the discovery of DNA’s double helix. To celebrate, we’re spotlighting Dr. Benjamin Bakall, a retinal specialist and ophthalmologist at Associated Retina Consultants in Phoenix, Arizona. Dr. Bakall’s dedication to genetics and patient care highlights the importance of genetic testing in advancing treatments and cures for inherited retinal diseases.
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Lead With Luna: Meredyth’s Journey With Her Guide Dog
Beacon StoriesIn honor of National Dog Day, we’re celebrating the work of guide dogs and raising awareness about the importance of guide dog services by sharing Meredyth’s story. Her guide dog, Luna, has greatly improved her independence and quality of life, showcasing the significant benefits of guide dog services for those who are blind or have low vision.
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Karen Petrou Appointed as Board Chair of the Foundation Fighting Blindness
Foundation NewsDavid Brint retires after eight years of distinguished service; Petrou to lead effective July 1, 2024.
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Beyond Labels: The Inspiring Journey of a Refsum Disease Advocate
Beacon StoriesAfter years of seeking answers, Alan Gunzburg was formally diagnosed with Refsum disease, a rare genetic disorder. Drawing on his unique journey, Alan sheds light on the obstacles he’s faced and how his experience motivated him to make a positive impact in the lives of others.
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“Great Vision Does Not Require Great Sight”
Beacon StoriesKenyetta has worked to help others through the nonprofit sector for over 25 years, despite being diagnosed with Stargardt disease at the age of 31. Kenyetta is now the chief operating officer of REACH Riverside Development Corporation and has been recognized for her career achievements by many.
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Beacon Stories
Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.
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A Family United: Thomas’ Hero’s Journey with CRB1
Beacon StoriesWhen Becky’s son Thomas was diagnosed with a rare CRB1-associated disease, their family’s world changed. But today, Becky and Thomas are embracing advocacy, community, and research as they work to raise awareness and fuel progress toward treatments and cures.
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Positivity Always Shines Through
Beacon StoriesLinda has been blind since birth, but she never lets her visual impairments stop her from doing what she loves and staying positive through it all.
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#GivingTuesdayNow Featured Researcher Dr. Shannon Boye
Research NewsA Lifelong Science Nerd is Winning the Fight Against Blindness
