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Apellis’ Treatment for Advanced Dry AMD to Receive Priority Review from FDA
Research NewsThere are currently no FDA-approved therapies for geographic atrophy (GA), the advanced form of dry AMD.
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The Assistance Fund Opens New Program for Inherited Retinal Diseases
Research NewsThe Assistance Fund, an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs, today launched a new program that offers financial support for individuals with inherited retinal diseases.
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A Gene Therapy Primer for People with Inherited Retinal Diseases
Research NewsEverything patients and families want to know about gene therapy…and a little bit more
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Beacon Stories
At only three months old, Brendon was diagnosed with x-linked juvenile retinoschisis (XLRS). But with several other family members also with XLRS, Brendon knew he could still follow his passions for science and space. Now 22, Brendon is an Aerospace Engineer, starting a PhD program at UCF, and was recently awarded the prestigious National Science Foundation’s Graduate Research Fellowship.
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Advocating for the Foundation Through Professional Outreach
Beacon StoriesAs a longtime supporter and advocate for the Foundation Fighting Blindness, Lora has recently begun working with the Professional Outreach team. Lora’s work helps eye care professionals in the Philadelphia region provide vital resources for their patients with inherited retinal diseases.
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Foundation Fighting Blindness Announces Over $9 Million in New Research Awards for FY2025
Research NewsThe Foundation Fighting Blindness is proud to announce the funding of 16 innovative research projects in Fiscal Year 2025, totaling over $9 million in new grants.
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A Eureka Moment for Paul Yang Boosts Advancement of Vision-Saving RP Drug
Research NewsHis latest Foundation grant is helping move the drug toward a clinical trial
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Patient Registries Help Advance Research for Rare Diseases
Research NewsMany registries enable patients to collect and track information about their health, so they can take an active role in managing their care.
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Charlie Kramer: Life Coach for the Disabled
Beacon StoriesRetinitis pigmentosa (RP) runs in Charlie Kramer’s family, so it wasn’t a surprise when he was diagnosed at a young age. But now, at 29 years old, Charlie is following his passion for helping and empowering others as a full-time life coach for those with disabilities.
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RD Fund Launches Opus Genetics to Advance Gene Therapies for Inherited Retinal Diseases
Research NewsFirst two programs are for Leber congenital amaurosis: LCA5-lebercillin and LCA13-RDH12
