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Displaying 321–330 of 894 results for “vision connection”
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Resourceful Advocate for Research
Beacon StoriesManorthia was diagnosed with retinitis pigmentosa (RP) when she was 22 years old but didn’t start experiencing considerable vision loss until years later. Once she began to notice her vision deteriorating more rapidly, she reached out to the Foundation Fighting Blindness to get involved with the blindness community.
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Discovering Confidence Through Vulnerability
Beacon StoriesFashion and Lifestyle Blogger Lindi Goff is sharing her authentic self by being vulnerable about her journey with Stargardt disease.
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Cleanlogic Co-Founder’s Inspiration Comes From His Mom
Beacon StoriesIn honor of Mother’s Day, we’re sharing a special Beacon Story featuring Isaac Shapiro, co-founder of Cleanlogic. Isaac’s mother, Bea, lost her vision at only seven years old but went on to become an entrepreneur and help others in the blind and visually impaired community through adaptive technology.
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ProQR Doses First Patients in Phase 2/3 Clinical Trials for its USH2A-Exon 13 RNA Therapy
Research NewsThe Sirius trial is for USH2A (exon 13 mutations) patients with advanced vision loss. The Celeste trial is for USH2A (exon 13 mutations) patients with moderate to early vision loss.
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Fighting RP on the Foundation’s Frontline
Beacon StoriesMichelle Glaze, the Foundation’s associate director of professional outreach, shared her personal story of being diagnosed with retinitis pigmentosa (RP) in the film ‘Decoding disease.‘ In her own words, Michelle also describes her journey with genetic testing and the Foundation Fighting Blindness’ impact on her life.
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Research News
Precise and Sensitive Outcome Measures are Essential for Getting Vision Treatments through Clinical Trials
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Nearly 50 years after its inception, the Foundation Fighting Blindness, the world’s leading organization committed to finding treatments and cures for blinding retinal diseases, unveils a rebranded chapter program, “Lulie’s Next Chapter for Light & Vision.”
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Erin’s Unwavering Determination, Then and Now
Beacon StoriesDiagnosed with retinitis pigmentosa at a very young age, growing up, Erin never let her progressive vision loss stop her from keeping up with her friends and siblings. Throughout the 1990s, Erin was featured in several Foundation Fighting Blindness campaigns to raise funds for retinal research. Today, 34-year-old Erin is resilient as ever, still hopeful research will one day find her a cure.
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Welcome to our livestream series, Music to Our Eyes. In each episode, we sit down with various artists to discuss their experiences with vision loss and discuss their commitment to creating music that celebrates diversity and belonging.
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SparingVision Raises €44.5 Million for Gene-Independent RP Therapy
Research NewsThe company is planning a clinical trial for its emerging neuroprotective treatment in 2021
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